I disagree, it is about partnership. Nothing about us without us.
A great example is Lenny Jason who has long been willing to listen to the community and even collaborate.
Also, as an aside, a surprising number of people on this forum come from scientific backgrounds, careers of which have been...
They say "bona fide" but we know they really mean people screened not to poke holes in their work. I bet if a researcher like Carolyn Wilshire, Jonathan Edwards etc tried to get ahold of the data, they'd simply come up with excuses.
Their policy is very different from the policies of the "open...
If it isn't immediately obvious, they're trying to include all of the post-infection cohort studies that they can. This includes studies lead by researchers who aren't popular on this forum...
I somewhat disagree.
There is value in following up these cohort studies to investigate factors that we currently lack evidence on, long term prognosis for example. Though they would ideally adopt fairly rigorous methods of defining recovery and estimating levels of disability, rather than the...
I am interested in sight issues as well as I suffer from strong eye pain and eye sight degradation over the last 4 years or so.
The visual issues may be nonspecific and associated with fatigue in general, but it shows that our fatigue has physical effects and is not merely a mistaken signal to...
Bullshit.
They can review the quality of the reviews process. They can review why they are selecting terrible reviewers.
The process is known to be flawed and there is much discussion on this.
https://www.rand.org/pubs/technical_reports/TR742.html
http://www.bmj.com/content/343/bmj.d4797...
This is not completely true, I've seen more than a handful of researchers at well known universities with good research plans who had their grant applications rejected.
The NIH could fund more if they wanted to - some of their grant reviews have been biased/of poor quality.
The other side of...
The arguments about diagnostic criteria used in UK/Dutch CBT or GET studies is a distraction/aside when such studies have not provided any objective evidence of improvements.
I'm not at all amazed. Wyller's intended audience is not us, it is those in charge of making health policy and medical decisions. It is the perfect reply for that audience - an authorative "top scientists disagree", nothing to see here move along. If he engages with the details, they will go...
The truth was a bit more gloomy hey? I guess he didn't bother reading any of the studies on prognosis.
https://www.ncbi.nlm.nih.gov/pubmed/15699087
The rest of the conclusion about "prognosis for an improvement in symptoms" are still quite gloomy as the improvements are small
Yes, I've heard the 1/3 + 1/3 + 1/3 anecdotes over the place - but he is not the only one to repeat this nonsense, for example I've seen Michael Sharpe repeat it (ABC radio Australia) referring to the PACE trial results. Michael Sharpe should know better - but we know he doesn't seem to care...
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