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  1. Andy

    Article: Science: The Calorie Counter

    Rediscovered this article on social media. I do think these particular extracts are interesting, "Pontzer still measures exhaled CO2 to get at calories burned in a particular activity, as he did with Christina’s stress test. But he found that physiologists had developed a better way to measure...
  2. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Top 5 donating countries at time of posting; UK - 130 donations USA - 89 donations Norway - 32 donations Denmark - 29 donations Australia - 27 donations
  3. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $58,830, 90% of target 2 days left https://crowdfund.berkeley.edu/project/40018
  4. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,584 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  5. Andy

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Text from tweet, "Today, Visible is launching a research collaboration with neuroscientist David Putrino (@PutrinoLab) David + the team at Mt Sinai have been relentless in pursuing answers for people with #LongCovid and #MECFS. You can help them on this mission" So relentless that he has...
  6. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Text of tweet, "“O’Neill told the coroner’s court: “When Maeve concluded that the hospital was unable and indeed unwilling to provide the treatment she needed, she was right.” Article: ‘Hospitals have no services for most severe ME cases, coroner told’" Also links to an article from The Times...
  7. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Chris Ponting talked about DecodeME and genetic investigation of ME/CFS in a recent NIH webinar on genetics. His talk runs from 11:57 - 49:35 in the video linked below.
  8. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 20th Nov. Facebook: https://www.facebook.com/sci4me/posts/pfbid02J8CVPxiXgzjQJqf3kMxUk9EcKLjtPmFX4BUFAZPDNCfPbyohBf8z8uYPqfCxUo1ql Mastodon: https://med-mastodon.com/@s4me/111481882854768566
  9. Andy

    Impaired Mitochondrial Respiration in REM-Sleep Behavior Disorder: A Biomarker of Parkinson's Disease? 2023 Ongari et al

    Abstract Background Idiopathic rapid eye movement (REM) sleep behavior disorder (iRBD) is associated with prodromal Parkinson's disease (PD), but the mechanisms linking phenoconversion of iRBD to PD have not yet been clarified. Considering the association between mitochondrial dysfunction and...
  10. Andy

    UK: Recruiting: Inflammation and brain function in Functional Neurological Disorder: implications for diagnosis and treatment: Study 1

    So you are saying that we can do it, we've just got to believe strongly enough that it is possible?? ;)
  11. Andy

    UK: Recruiting: Inflammation and brain function in Functional Neurological Disorder: implications for diagnosis and treatment: Study 1

    I can accept that most of these people mean well but From the CDC website, "EBV infection can affect a person’s brain, spinal cord, and nerves. It can cause conditions such as— Viral meningitis (swelling of the tissues that cover the brain and spinal cord) Encephalitis (swelling of the brain)...
  12. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 20th Nov. Facebook: https://www.facebook.com/sci4me/posts/pfbid02bFntibezABh6rP1ooB5fXVbo9pa2FanXw54xBpERiDvRyMnm15Q9jQ9ZgSWXWvSol Mastodon: https://med-mastodon.com/@s4me/111476259941189250
  13. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $54,423, 83% of target 4 days left https://crowdfund.berkeley.edu/project/40018
  14. Andy

    Illness-Promoting Psychological Processes in Children and Adolescents with Functional Neurological Disorder 2023 Kozlowska et al

    "5. Centrally Important Interventions: Used with All Children and Their Families 5.1. Setting Up Positive Expectations In the results section, we saw that illness-promoting cognitive processes and negative expectations pertaining to FND symptoms are common in children with FND. “Expectations...
  15. Andy

    Illness-Promoting Psychological Processes in Children and Adolescents with Functional Neurological Disorder 2023 Kozlowska et al

    Abstract Previous studies suggest that subjective distress in children with functional neurological disorder (FND) is associated with stress-system dysregulation and modulates aberrant changes in neural networks. The current study documents illness-promoting psychological processes in 76...
  16. Andy

    3-year outcomes of discharged survivors of COVID-19 following the SARS-CoV-2 omicron (B.1.1.529) wave in 2022 in China:... 2023 Zhang et al

    Background There is a paucity of data on the natural trajectory of outcomes in survivors of COVID-19 beyond 2 years after symptom onset, and no evidence exists on the effect of re-infection in people with long COVID symptoms. We aimed to investigate the 3-year health outcomes of COVID-19...
  17. Andy

    Post-Acute Sequelae of COVID-19 (PASC) in Pediatrics: Factors That Impact Symptom Severity and Referral to Treatment, 2023, Soprano et al

    Abstract The post-acute sequelae of COVID-19 (PASC) is a complex condition. While there are emerging studies on its effects in adults, there is scarce research regarding the long-term effects of COVID-19 infection among youth. Several researchers have likened long-haul COVID-19 to chronic...
  18. Andy

    Characteristics of Persistent Symptoms Manifested after SARS-CoV-2 Vaccination: An Observational Retrospective Study... 2023 Tokumasu et al

    Full title: Characteristics of Persistent Symptoms Manifested after SARS-CoV-2 Vaccination: An Observational Retrospective Study in a Specialized Clinic for Vaccination-Related Adverse Events Abstract Background: Although many adverse reactions after SARS-CoV-2 vaccination have been reported...
  19. Andy

    UK: Recruiting: Inflammation and brain function in Functional Neurological Disorder: implications for diagnosis and treatment: Study 1

    What is the purpose of this study? This study aims to investigate Functional Neurological Disorder (FND). We are particularly interested in investigating the triggers and symptoms of FND. To do this we will ask you a series of questions during this online questionnaire. These questions will help...
  20. Andy

    Dysautonomia, but Not Cardiac Dysfunction, Is Common in a Cohort of Individuals with Long COVID, 2023, Tabacof, Putrino et al.

    No mention of whether the participants would meet ME/CFS criteria or not.
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