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6,337 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Trial By Error: My Talk at Cambridge Last October on “Epidemiological Sleight-of-Hand: The Troubling Case of ‘Medically Unexplained Symptoms'” "I gave a talk at Cambridge University last October called “Epidemiological Sleight-of-Hand: The Troubling Case of ‘Medically Unexplained Symptoms.'”...

News in Brief posts for w/c 11th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid0u47iNmaLPUwvBQoSUQr3jbUocoGdnk1d51rCgzZFzpUCw3aJoguqi3gueFLqg2CBl Mastodon: https://med-mastodon.com/@s4me/111079926970240124

6,232 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Abstract Long COVID, or post-acute COVID-19 sequelae, is experienced by an estimated one in eight adults following acute COVID-19. Long COVID is a new and complex chronic health condition that typically includes multiple symptoms that cross organ systems and fluctuate over time; a...

[Approx 25% of participants had LC] Background Chronic fatigue (CF) is a complex phenomenon without clear etiology that may require long-term treatment, but to date, no specific therapy has been identified for it. Some botanicals might be helpful in the management of CF. Among these botanicals...

Online version, https://journals.plos.org/plospathogens/article?id=10.1371/journal.ppat.1010361

From social media, "You are invited to our 2023 online Annual General Meeting (AGM) – all are welcome, and registration is free! When: Friday 29 September 2023, 2-3pm Where: online via Zoom At the AGM, you can hear from Action for M.E. staff and trustees, ask questions, and find out how...

6,164 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

It is over a decade since the new diagnosis of Somatic Symptom Disorder (SSD) was introduced in the DSM-5, and Bodily Distress Disorder was proposed for inclusion in the ICD-11. These new diagnoses were introduced to move away from the terms “somatoform” and “somatization”, which were thought to...

Abstract Lyme disease is the most common vector-borne illness in the United States and has been causing significant morbidity since its discovery in 1977. It is well-documented that about 10% of patients properly treated with antibiotics never fully recover, but instead go on to develop a...

Thought it was worth posting as, to me, it hints that the attitudes that pwME who have serious eating/digestion issues might be running in to are the same attitudes as experienced by patients in the articles above.

From Sept as well. Opinion piece in the Guardian, "If I’d been given palliative care when I had an eating disorder, I would not be here today", https://www.theguardian.com/commentisfree/2023/sep/16/palliative-care-nhs-patients-eating-disorders-recovery This story seems to have been rumbling...

From Sept 2023, "NHS plans to give youngsters suffering anorexia palliative care instead of treatment should be ripped up, a leading campaigner has said. Leaked documents which emerged over the weekend revealed patients as young as 18 may be placed on a “palliative pathway”, which focuses on...

[A study from 2009.] Abstract Chronic fatigue syndrome (CFS) is characterized by debilitating fatigue, often accompanied by widespread muscle pain that meets criteria for fibromyalgia syndrome (FMS). Symptoms become markedly worse after exercise. Previous studies implicated dysregulation of...

Highlights The cause of MS-related fatigue is elusive, but inflammation is a proposed mechanism. Few studies have compared effect of disease modifying treatments on fatigue. MS-related fatigue affected 80% of the pwMS in this large cross-sectional study. We found no association between...

5,958 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Brian Hughes on Twitter "Our call to action for the healthcare and policy community -- it is time to stand up for science and finally dispense with obsolete psychobehavioral treatments for #MECFS and #LongCovid In @Health_Affairs Forefront, with @davidtuller1 & Steven Lubet" and David Tuller...

"Change in medicine is never easy, especially when practitioners are asked to dispense with long-held beliefs about an illness. It is this challenge—of steering an entire community to collectively revise its understanding of reality—that philosopher Thomas Kuhn flagged in his classic analysis of...

5,847 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review