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Miriam on Twitter, "During discussion, @DrMaureenHanson suggested that there is now enough evidence of brain inflammation to justify simply calling the illness "myalgic encephalomyelitis" and dropping "chronic fatigue syndrome" entirely."

"Well the latest results of the ONS Covid Winter Infection Survey are in and they are, frankly, eye-popping. The estimated prevalence (percentage of infected people) in England as of a week ago (4.3%) is already as high as the Covid wave last December and rapidly approaching the peak of the July...

9,768 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Email received today, "Dear all, The December 2023 report from the Independent Advisory Group is now available online. There are updates on: Preliminary timetable for the new year; Complaints and communication; and IAG membership. Best regards, Cochrane"

"Post-viral syndromes are nothing new.7, 17 We already knew of the significant ongoing burden of disease in many infected with SARS-CoV-1 almost 20 years18 and MERS over 10 years ago." Knew about the burden, but did next to nothing about it. And yet another article that comes as close as...

Daughter's death 'could have been avoided' The mother of a woman who died after being discharged from hospital with Myalgic Encephalomyelitis (ME) says the NHS has no way to treat the condition. Maeve Boothby-O'Neill died aged 27 at home in Exeter in October 2021. A recent legal hearing into...

Background: Fibromyalgia is a prevalent condition affecting 1–2% of the general population and can result in significant disability. Physicians and patients frequently encounter challenges in managing this condition. Aim: The aim of this study was to explore novel management approaches through...

Background: Glycogen storage disease type 5 (GSD) is an autosomal recessive inherited metabolic myopathy caused by a deficiency of the enzyme muscle glycogen phosphorylase. Individuals with GSD5 experience physical activity intolerance. Objective: This patient-led study aimed to capture the...

Or the differences could be down to length of illness. "Illness duration at the inclusion time, years ME/CFS, 7.4 ± 0.7 LC, 2.1 ± 0.6"

Our household of two people received today three cards from Berkeley.

Background Prevalences of Post-Traumatic Stress Disorder (PTSD) and Complex Post-Traumatic Stress Disorder (CPTSD) have not previously been compared between individuals with long COVID and individuals with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), and healthy age-matched...

Published papers thread for w/c 11th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid02rKbS9xqhParXB5miDyCxschKtb5BezxfGQ6pe7z3pEHw86QYC79ifajP3Zb1sE7nl Mastodon: https://med-mastodon.com/@s4me/111600888462758464

9,720 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

News in Brief posts for w/c 11th Dec Facebook: https://www.facebook.com/sci4me/posts/pfbid02X9qNLLMnudvq1RboSegNJrhuZy8fphniLqfSCjy4hVnzL5HCCqDjxpbmc61nKzvFl Mastodon: https://med-mastodon.com/@s4me/111595582727954238

Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch PACE-trial called FITNET admits that she harmed about 30 to 40 % of the patients with "#CFS". Obviously this is a huge underestimation & she's still promoting CBT/GET eventhough it goes against...

Post copied from News from The Netherlands Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch PACE-trial called FITNET admits that she harmed about 30 to 40 % of the patients with "#CFS". Obviously this is a huge underestimation & she's still promoting...

"Introduction Functional disorder (FD) is typically characterized by the presence of one or multiple chronic symptoms, that reduces functional capacity and quality of life, which cannot be attributed to a known somatic disease [1]. The diagnosis/term FD is a relatively new although the...

Full title: Sociodemographic and hospital characteristics for patients with severe functional disorder receiving specialized treatment at hospital. A regional register-based cross-sectional study from Denmark Objective 10% of all adult Danish citizen has a functional disorder (FD). This study...

9,661 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

So those of us who don't support the idea of encouraging random people to consume a wide variety of antibiotics and supplements, that have little to no evidence to back up their use are close minded? You certainly seem to be suggesting that.