The way I see it is this: they recognize there has been a burden on QMUL (even if some of it has been self-inflicted) and they accept that there has been a lot of requests (and I have made a few of them), and as they point out, I have pretty much had the second part of my request handed to me...
I view this decision more positively than others.
I think it's important to read it in the context of the notice by the ICO which upheld QMUL's exemption, and was highly damaging, and that of previous decisions by the Tribunal.
I also think it should be read as a legal document which means...
Just to clarify, this decision was not about the data.
QMUL has already agreed to try to provide the trial data I requested.
This was about some information relating to harassment I asked for.
Thanks, Jo.
That's interesting what you say about the processing both in itself and as a reminder of another consequence of their model and how it was adopted: they stopped listening to patients. I and others were saying these things back in the late 1980s.
As I thought, they haven't posted the patient-level data.
This is what they have uploaded: 'basic results'.
Any thoughts? Worth going after the patient-level?
I haven't looked at this, but it sounds interesting and relevant.
It is accepted by the CBT-GET promoters that there are biological changes in patients with ME. A key part of their argument has always been that psychotherapy can bring about or reverse biological changes.
Here is a study that...
One other thing on that picture. It's something I have mentioned on Twitter before. 31 (?, CBA to count again) men and 2 women. Malingering. Hysteria. Delusion. Tired women's disease.
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