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  1. Kitty

    Cleaning tips and recommendations for cleaning products

    Tee hee! I struggle with the duvet cover sometimes, and I'm not severely affected – I've recently found myself flirting with the idea of going back to blankets. I even looked up whether you could find secondhand some of the fabulous Tetem patterned blankets we had as kids in the 1960s. Oh...
  2. Kitty

    Coronavirus - worldwide spread and control

    This is a serious point, and if the virus does spread widely in the UK, I'm hoping it's dealt with. People living with or caring for an individual categorised as highly vulnerable, but who are not themselves showing symptoms that would warrant an absence from work, ought to have protection...
  3. Kitty

    Coronavirus - worldwide spread and control

    :laugh::laugh: The worrying thing is that I remember it being quite nice – God only knows what the rest of my diet was like if that was one of the highlights!
  4. Kitty

    Coronavirus - worldwide spread and control

    One particularly memorable effort from my bedsit days in the 1970s was made from onions, a tin of tomatoes, some slightly rubbery carrots, plus half a box of Alpen to thicken it up! :rofl:
  5. Kitty

    Coronavirus - worldwide spread and control

    I can't say I am, on a personal level at least. I probably won't change my routine unless I'm told to do so to protect others, or buy anything special. I think those with pre-existing lung conditions, or reduced immunity due to cancer treatment or similar, will be much more vulnerable than...
  6. Kitty

    Anyone have trouble writing by hand?

    People think I started school in the 1760s rather than the 1960s when I tell them we learnt to write on little green slates! We had them all the way through infant school, then graduated onto absurdly long tapered ballpoint pens in junior school. I changed schools halfway through the juniors...
  7. Kitty

    The Future Challenges: Replenish-ME

    I'm confused. Is the PWME in the trolley? If so, why are they wearing a Manhattan diagram as a hat?
  8. Kitty

    Coronavirus - worldwide spread and control

    Presumably this would improve if, as seems possible, the virus escapes control measures and becomes pandemic? It's the containment effort rather than the virus itself that's currently causing the disruptions. I suppose if it's no longer worthwhile trying to prevent it, it becomes like a winter...
  9. Kitty

    Economic burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to patients: Comparative study, 2019, Araja et al

    The basic out-of-work benefit in the UK is less than £4k per year for a single person, though that doesn't include housing costs. People with significant disabilities receive more (sometimes quite a bit more), but enhanced payments aren't easy to obtain for PWME who're, for instance, still able...
  10. Kitty

    Anyone have trouble writing by hand?

    I'm not sure I could press hard enough to do that these days! :laugh: I have a fat pen with an angled barrel, so I barely need to grip it all, and it slides over good quality paper with almost no resistance. I still struggle to write, of course – I'd need at least five lengthy breaks to fill...
  11. Kitty

    Anyone have trouble writing by hand?

    At Christmas, a friend with ME was talking about how much she struggles to write these days. A couple of weeks ago I bought her a fountain pen as a birthday gift, and she called this morning to say she was really surprised by how much easier it is to use. You don't have to grip a fountain pen...
  12. Kitty

    (Not important) Irish court case involving an individual with chronic fatigue after Legionnaires' disease

    It's be really dangerous, so I'm not at all surprised it can be an ME trigger. There was an outbreak of it some years ago where I used to live, caused by the aerosols spraying out of badly-maintained air conditioning units and falling onto passers-by. One old fella died of it; it took a long...
  13. Kitty

    Cleaning tips and recommendations for cleaning products

    Limescale: dry surfaces after use, including the shower head – I unscrew it, wipe it with a cloth, and leave it to dry. I keep a dry cloth next to sinks for wiping splashes whenever I've got the energy, and tiled bathroom walls or shower panels can be dried in seconds with a cheap microfibre mop...
  14. Kitty

    Is scan‐negative cauda equina syndrome a functional neurological disorder? A pilot study, 2020, Gibson et al

    'Many patients with suggestive symptoms of CES have no radiological correlate.' This is hardly astounding, though, given that doctors and physios know very well how devastating the consequences can be. They send anyone suddenly developing symptoms that could indicate CES off to A&E, knowing...
  15. Kitty

    How to assess if a research paper has used best-practice protocols?

    I usually start from the assumption that a study on a branded food supplement is part of the marketing strategy. It can therefore be ignored until it's been replicated in a reasonably well-defined group, with measurable outcomes...funnily enough, these tend to be few on the ground!
  16. Kitty

    Coronavirus - worldwide spread and control

    I'd either have to wear an entire goldfish bowl over my head, or boxing gloves on my hands, before I could remember not to touch my face for more than 12 consecutive seconds! #MEbrain :laugh:
  17. Kitty

    Robert Naviaux' Lab - News - from 2019 onwards

    I suspect we don't, at least nothing very solid. I think he may be referring to the fact that a proportion of ME patients report that they've had good remissions followed later by relapse, to the point that it's become a commonly recognised (as opposed to actually researched) feature of one...
  18. Kitty

    UK: Universal credit could 'steamroll vulnerable into poverty'

    It's already doing so, if the TV programmes are anything to go by. I watched last night's episode, and it was heartbreaking – some lovely people, trying so hard, but just struggling along on next to nothing.
  19. Kitty

    Australia: Say NO to the cashless debit card!

    If people are so dependent, they'll surely just resort to stealing? I'd never heard of schemes like this before. It sounds like a major assault on human rights.
  20. Kitty

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    I'm not sure – it could certainly compromise people doing certain jobs, but as someone who's always had OI, I suspect those prone to it will naturally avoid going into those occupations. I realise it isn't the case for everyone, but OI has only ever affected me when sitting upright at times...
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