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sometimes :)

Regarding the blood test she is wanting to talk about, don't we need to be careful here? Although Ron Davis' team are confident it discriminates between pwME and healthy controls, I don't think it is yet proven to discriminate between ME and other illnesses. I know Ron Davis says he's hopeful...

It is also true that researching things in depth and analysing what you find is a skill in itself, and by no means everyone has that skill even when they were healthy.

Not sure it is.

The stuff inside their heads you mean ... :rolleyes:

Yes, I agree there should be.

I'm not entirely sure. I wonder if it gives insight into how incredibly blind he is to perspectives other than his. Given the way he (and the PACE mindset generally) believes ME/CFS is an illness solely of faulty perceptions, I strongly suspect he may truly still believe that pwME need nothing...

I don't think there is anything sinister in this, because ... https://pathways.nice.org.uk/ ... looks to list a great many conditions that have now had this flowchart approach applied. I suspect the timing is purely coincidental with the ME guideline being updated. As they instigate any...

Maybe it also depends on what triggers the trap in the first place. If the trap itself is a downstream effect of something else, and if that something else still still persists, then they might still be looking in the wrong place - at a knock-on effect rather than the root cause. But fingers...

I lost a friend and colleague to cancer not so long ago, and he and his wife both attended counselling sessions. They saw these sessions as lifelines for them both in horrendously difficult circumstances. So I don't see any need or point to knock it, it's just not the same thing, nor for the...

[my bold] The answer is absurdly simple. They are different treatments with different outcome objectives! For cancer it is supportive with no pretence of claiming improvement or recovery from their illness; just helping people cope with the fallout. For ME/CFS, they very much do claim...

Why do I get the impression MS is trying to reframe how psychiatrists such as himself are perceived (including by his peers), and trying to exit from the hole they have dug. As Prof. Ola D. Saugstad said at Norway's Mission Millions event:

Added to which, GET especially can harm some pwME, with no way of knowing beforehand who those people will be, so becomes a form of Russian roulette.

[my bold] I have the greatest admiration and respect for you @JenB, and immensely pleased for your dramatic improvement. But the bit I've highlighted is what really concerns me, because that is the point many are making here. Time and future research may well show a causal relationship; but it...

Being from the UK, I'm not very clear what a "Resolution" actually is in the context of US politics. Could someone enlighten me please.

Is it possible somebody could approach him regarding this? @Russell Fleming?

Brilliant result! Would be good if this can help to strengthen our case here in the UK.

There is a lot of anecdotal evidence that ME seems to be triggered by viral infections, and there seems to be some indications amongst this thread and others that surgery might also be a factor. In my wife's case she had a relatively minor operation, together with a nasty flu bug post op, and...

The counterpoint being that some prominent world figures seem borderline insane, yet accepted as normal by many. I suppose sanity is in the eye of the beholder.

Pure speculation on my part here, but worth airing. I wonder if someone sleeps with very poor "head posture" could cause some issues over time. If, for example, they sleep with very unsupportive pillows, or otherwise putting undue strain on their neck.