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Yes. Its really difficult because the topic is soooo involved & complicated, & it's difficult to get anything like an accurate picture without at least 1 'long read' piece. I find it really difficult to know which article to link to when i'm trying to raise awareness. I think that's partly why...

clicking through to that thread of eskabaduGotME's makes quite good reading although i didnt manage any further down than this vid from Mark Vink which is amusing:D

Goodness me... are we actually seeing some curious doctors?! Interesting paper, only case studies but still... they are to be commended for looking past the obvious. One of the case studies... While she may well have had Munchausens (finding abnormalities doesnt preclude that) I sure hope...

What Sam said. Too right! All power to @dave30th God bless him :) But the more the better so although I did post this before on the special report thread & fair enough if people have decided against it or no one is able, but i wondered if trying to get Ian Leslie interested might be of use...

Well i personally wish those 'it's real, it's physical, it's ME' shirts would disappear, rather than sell more! That would be good.... very good... but it'd have to be careful not to include anything factually incorrect. And given the meme we are fighting, also avoid insulting language. It's...

Sorry to do a 'drive by' but i've been trying to stay away & limit the personal effects of all this awful. Am trying not to engage, for my own sanity. You are all marvellous for all your efforts to counter, analyze, comment etc. In terms of the possibility of getting a 'proper' journalistic...

Wouldnt it be marvellous if Kelland really has spliced Unger's words to the point that it pisses Unger off enough for her to do something about it! :D Just fantasising :)

Yes it certainly does, i feel a bit embarrassed by my lack of thoughtfulness there.

In the article @JaimeS Yes that is very true @Barry , I shouldn't have jumped to conclusions, am just so used to the CDC behaving badly I've been waiting for the 'other shoe to drop' since they made the changes. My head is exploding & i'm feeling too emotional about it all. I'm bowing out...

Unger, explaining why CBT GET been removed at the CDC.... what a ruddy cop out. ETA.... However, as @Barry so rightly points out in post #156, we have no idea what Unger actually said to Kelland. And given the way she has treated the words of others to fit her agenda.... So have removed my...

yeah. "this is going to hurt me more than it hurts you".... UGH :emoji_angry:

Can we get this printed out in big bold letters & made into a sticker for every non BPS committee member to stick on the top of their notes! LOL am only half joking!

My sentiments entirely Ravn. And I had plenty to say to them about those things too. So good that they actually bothered to ask & then listen. I hope it'll be useful for this too, because.. Mithriel you are sooo right, this is the part i find so mindbendigly frustrating that even those in...

:emoji_rolling_eyes: Perhaps that'll be so they can say (when there are no differences between treatment arms at long term follow up) "thats because the AM group all went on to have GET" ..... - like they did for PACE... (or was that PACE? perhaps it was one of the other studies iinto CBT/GET?)...

I very much respect her for actually taking pwME/CFS/whatever seriously and treating them with compassion & giving genuine support. I dont doubt that she has some good ideas and has helped many people accordingto their own enthusiastic testimony. However when i had a consult with her (over a...

a disturbing development

It's great that he is doing so much better, am really pleased for him. But wow that is sooo damaging for all the other children who's illness progression is not the same, & for whom 'building confidence' will make not the slightest bit of difference. Bracing myself for all the 'helpful'...

Heartbreaking :(

:D haha how apt..... but which knob are we referring to?

And £10,000? That amount is just insulting in it's trivialisation. It'll be what one of the DWP bosses spends on a weekend break in a European city. The people who make these decisions need to be held to account, but they wont be because that's the shit pile we're living in. So angry. Rest in...