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Yes the SMC created a fake controversy ("death threats & dangerous militants attacking science because of bigotry") to distract from the real one. The real controversy being that PACE showed CBT/GET did not work, and PACE was meant to be the definitive test for a specific medical-political...

Didn't her adopted sister also have ME at some point? Maybe I'm misremembering. Anyway. Does the chapter on ME/CFS explain why she has such an intense dislike for patients with this illness?

The story changes every time it's told. Sounds like she is making things up. Pretend to be one of them and destroy them from the inside is how this group of people operates, isn't it? Because they see themselves as sort of moral police and ME as group that promotes immoral thoughts and behaviours.

Why is monkeypox spreading at an accelerated rate now? I've read that the initial genomic analysis suggests that the increased transmission of the monkeypox virus is not due to mutations of the virus. Is SARS-2 causing immune suppression that favors transmission of the monkeypox virus?

That seems to show that a patient being labelled as malingerer may just mean that they don't have a normative symptom profile. Which could easily occur due to for example the patient having one diagnosed illness and one undiagnosed one, giving the impression that the patient has more symptoms...

Organophosphate-based pesticides have been linked to a ME-like illness. My understanding is that Sarin is chemically similar to these organophosphates pesticides but much stronger. Now Sarin has been linked to a ME-like syndrome. Can this tell us something about what might be going on in ME...

The book says "With MUS psychological processes are generating physical symptoms."

Very good.

Very encouraging. I love how the priority setting partnership makes it very clear that the CBT/GET approach and model is irrelevant for patients.

My impression is that the author seems to believe that CFS is caused by an undiscovered AIDS-like virus. Maybe I'm just misunderstanding. And then it's hinted that there is some establishment coverup. Again maybe I'm misunderstanding. I can see why this narrative appears to patients who have...

I wanted to highlight how a hypothesis of mitochondrial dysfunction is being proposed by mitochondrial researchers (Paul Fisher). This isn't just an idea from amateur patients. There was also a bit about a diagnostic test. And this graph is interesting because it looks like the biphasic...

Yes these patients will feel deeply betrayed when they realize they were told some nonsense to keep them quiet because physicians back then didn't want to put in effort in diagnosing the problem or at least speak honestly about being unable to do so.

Does Murphy have a good understanding of ME? According to a person diagnosed with mito disease and not involved in any way with the ME community those with mito disease can have something resembling PEM. Maybe PEM will just end up being part of a regulatory response that is seen when there is...

I came to a similar conclusion, which was: the illness he is experiencing or went through may have been a time where he felt awful and hopeless, a time for reflection and reevaluating his life, and also remembering other events from the past that were similar. I suspect he does not have a good...

The author says on Twitter that Atg13 in serum is “result” of autophagy impairment, not the “cause”. Autophagy was initially discovered by studying starvation, then later it was also found to play a major role in homeostasis. Autophagy sounds like the kind of maintenance process that might be...

I would like to invite Hungarian patients and professionals from relevant fields to join the global movement that aims to make lives better for ME/CFS patients and their families. We want to better understand what this illness is, develop diagnostic tests and find effective treatments.

The effect of cool water immersion is clear enough for me that I don't need instruments. I'm however not certain that what changes is the ANS. Within seconds, something in the body calms down, breathing and heart seem to go slower, deeper, stronger and it just feels right.

It helps degrade catecholamines, including dopamine, adrenaline and noradrenaline. The variant rs4818 of the COMT gene is very common in the general population so one would not expect it to have a large effect.

I think an important aspect of PEM is a strange inability to function well. I have what I would consider "mild PEM" at the moment. I tried to do some undemanding software work and I'm having difficulty completing any of the tasks I set out to do. I run out of patience and get frustrated, make...

I'm not sure. Maybe they're just naive and are being misled by the BPS spin. It's strange how the BPS research gets funded so easily with so little quality control.