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  1. Hoopoe

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    If so much criticism is of CBT/GET here, it's because of all the different schools of thought, its theoretical foundation is one of the most absurd, the quality of science the most consistently flawed despite significant funding and credentialed authors, and also the most widely applied...
  2. Hoopoe

    Impaired TRPM3-dependent calcium influx and restoration using Naltrexone in natural killer cells of [ME/CFS], 2022, Eaton-Fitch et al

    I believe the "non-selective" means that it also allows other cations to pass. Cations include sodium, potassium, magnesium, calcium and others. TRPM3 is most prominently expressed in the kidney with lower expression levels in the central and peripheral nervous systems, testis, and retina. Do...
  3. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    One could argue that the lack of transparency protecting the CBT/GET people is one of the privileges that has corrupted them. All this privilege and never any consequences for bad behaviour is how they ended up in this mess. They wanted to be our saviours but structural problems in academia and...
  4. Hoopoe

    A Picture of_ME: media images of ME

    Some thoughts. We want to have pictures to accompany articles because pictures make articles more attractive and can communicate things that language cannot. But ME/CFS is an invisible illness, except maybe in those patients that are very severely affected. Photos of the very severely ill...
  5. Hoopoe

    ‘I can’t cope with multiple inputs’: a qualitative study of the lived experience of ‘brain fog’ after COVID-19 , 2022, Greenhalgh et al

    Most of the twitter summary is okay but this part shows the BPS bias of the authors. They're already using causal language and talk about vicious circles and evoking vague mind-body mechanism. Maybe brain fog has nothing at all to do with complicated biopsychosocial interplays and chain of...
  6. Hoopoe

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    My understanding is that the proposals must be from organizations in the Netherlands, and the named collaborators must also be from the Netherlands. It's worded so that it might allow collaborators from other countries under specific circumstances. The request to write the proposal in English...
  7. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I believe in a biomedical solution because the just-try-harder and the think-myself-well and the good-lifestyle approaches didn't work. And also because over time my illness worsened and it becomes harder to believe in non-biomedical solutions with increasing illness severity. This depiction of...
  8. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Garner's behaviour explains so much about Cochrane, doesn't it? The anti-pharma and the pro-lifestyle changes bias. In the end it all seems to come down to difficulty adjusting to the reality of having a mortal, vulnerable body and the existence of terrible uncontrollable diseases. I can...
  9. Hoopoe

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    The petitioner gave a very good speech, quickly describing the level of impairment and desperation of patients, the unbelievable neglect, psychologization, and economic impact. Also the expectation that cases will rise substantially due to the pandemic. The petitioner said that his disability...
  10. Hoopoe

    Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS, 2022, Yu Wu

    The patients had a "concurrent history of mold exposure". It's not clear to me what that means. Were the patients living in moldy buildings? Were they living in them at some point in their lives, maybe years ago? There also needs to be a control group because it could be a situation where...
  11. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I still can't process that Flottorp is apparently a trained scientist with an interest in quality of evidence and yet appears to believe in the lightning process on the basis of anecdotes and junk studies.
  12. Hoopoe

    Strongyloidiasis - nematode infection

    Florist diagnoses her own strongyloidiasis infection https://www.dailymail.co.uk/news/article-10503761/Florist-57-agony-dismissed-FIVE-years-lethal-snake-parasite-body.html
  13. Hoopoe

    News from Scandinavia

    I wonder how many cases of disability from ME/CFS secondary to covid can be attributed to Per Fink's false claim that there is no relationship between infection and ME/CFS. Maybe none because the decision to withdraw the anti-covid measures wasn't based on this information. Maybe it was central.
  14. Hoopoe

    News from Scandinavia

    With Per Fink giving advice, it's not surprising that Denmark is acting like long covid doesn't exist.
  15. Hoopoe

    News from Scandinavia

    I looked a bit at that. It says "bodily distress disorder" is a term used to refer to ME/CFS. It says the illness is determined by cultural factors, that the illness is only seen in some countries and that prevalence in the US is sharply declining. No references are given if I remember right...
  16. Hoopoe

    Help Me Write A Quantum Leap Episode About ME

    ... then the protagonist discovers this is impossible and has to invent a cure instead, which turns out to be easier.
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