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  1. Hoopoe

    Orthostatic intolerance

    Is pressure in the head related to orthostatic intolerance? In my experience yes. Why does it occur? Is it a cause or consequence of orthostatic intolerance (or low blood pressure)?
  2. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Is this based on reliable experiments or the detached from reality fantasies of a LP coach?
  3. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    The narrative of psychosomatic illness may also be a way for some to express how difficult some events and experiences in their life were. "It was so bad that it caused my thyroid disease". From this angle psychosomatic illness may be almost exactly how somatization is often described: a way...
  4. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    Can a psychological therapy stop the hair from falling out? I don't think it could.
  5. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    These responses are very different from the problems that are typically labelled psychosomatic illness. That's why I think such examples are not a proof of concept of psychosomatic illness. Psychosomatic illness is unexplained illness with no clear cause, while these bodily reactions have a...
  6. Hoopoe

    BPS attempts at psychologizing Long Covid

    Responding to article in post 665 It's more about gender ideology than about long covid. The author is not very bright for thinking of long covid as an ideology. This is being quoted out of context. What was meant including suspected long covid patients in research even if they do not have a...
  7. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    I had panic attacks and I think they are an example of thoughts influencing symptoms (but not an example of thoughts causing illness). Being frightened by the horrible sensations it produces would make the sensations worse. I believe they are caused by a sudden and inappopriate catecholamine...
  8. Hoopoe

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    The widespread poor methodology in studies of psychobehavioural interventions suggests difficulty obtaining positive results otherwise.
  9. Hoopoe

    Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison, 2021, Moore et al (Esther Crawley)

    Children can be under a lot of pressure to deny or downplay their illness to make various adults happy.
  10. Hoopoe

    No signs of neuroinflammation in women with [CFS] or Q fever fatigue syndrome using the TSPO ligand [11C]-PK11195, 2021, Raijmakers, Knoop et al

    Abstract The pathophysiology of chronic fatigue syndrome (CFS) and Q fever fatigue syndrome (QFS) remains elusive. Recent data suggest a role for neuroinflammation as defined by increased expression of translocator protein (TSPO). In the present study we investigated neuroinflammation in female...
  11. Hoopoe

    Orthostatic intolerance

    I would like to know if the biomedically trained members can think of a way to connect a nonsense mutation of m-cadherin to orthostatic intolerance or ME/CFS.
  12. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My own explanation for Garner's behaviour: Identifying with ME threatened his friendships and self-image. The illness was also terrifying. When it passed after a few months, he created a new narrative that fit his old identity and the belief system of his old social circle. In this new...
  13. Hoopoe

    Trisha Greenhalgh on ME/CFS and Long Covid

    Is getting death threats is a quick way to elevate your status in UK academia?
  14. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Yes it's horrible that in the media there are these nonchalant conversations about whether patients are imagining it, making themselves ill with their beliefs, able to recover but choosing not to and so on. It's not normal. One shouldn't propose such ideas without some kind of evidence.
  15. Hoopoe

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    On most days I'm able to do a 20 minute walk and have done so for the last year or two. This has no noticable positive effect on the illness. Doing more than what I can tolerate quickly leads to a worsening. It does seem to lower heart rate somewhat and maintain some fitness that would otherwise...
  16. Hoopoe

    Relationship between Cardiopulmonary, Mitochondrial and Autonomic Nervous System Function after an Ind. Activity Prog, 2021, Newton,Morten

    Exercise is a dead end because there's no reason to think the disease has much to to with low fitness. That's just an idea popularized by the early CBT/GET papers which sought to rationalize the treatment.
  17. Hoopoe

    Blog: "The Death Threat Myth Exposed", Jennie Spotila

    Someone seems to be lying. She worked with Wessely at the time. I wonder someone instigated her to deal with criticism from patients by making up a death threat story, or she received a call from someone pretending to be a reporter.
  18. Hoopoe

    The Times: "The Sleeping Beauties by Suzanne O’Sullivan review — how the human mind can make us sick" by Tom Whipple, 2021

    My focal epilepsy can create sensations that are never felt otherwise and do not obey the usual rules of what I'm normally supposed to be able to perceive. It is very much like a dream in that aspect.
  19. Hoopoe

    The Times: "The Sleeping Beauties by Suzanne O’Sullivan review — how the human mind can make us sick" by Tom Whipple, 2021

    A voyeurism that is excited by psychosomatic cases and doesn't really want to know whether they actually are psychosomatic cases or not.
  20. Hoopoe

    The Times: "The Sleeping Beauties by Suzanne O’Sullivan review — how the human mind can make us sick" by Tom Whipple, 2021

    In Nicaragua, it is apparently normal to believe in demons as cause of illness. In other places it's normal to believe in psychosomatic causes of illlness, but just because something is a commonly accepted belief doesn't mean it's any more valid scientifically.
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