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Not sure about this. I generally take a skeptical stance about claims of anyone faking illness for attention or gains. This must surely exist as phenomenon but I think it's more likely that the people so accused have real problems that are just misunderstood and don't fit the mental model of...

I'm not sure how anyone in touch with reality could come to the conclusion that ME/CFS is the result of people wanting an identity and meaning through the status of disabled person. Maybe less fantasizing, more talking to real people is what he needs? What does he mean with "disability as just...

What is meant with disability as identity? Does it just mean viewing myself as disabled? _______________ Go to this thread for further discussion on this topic: 'Disability as identity' - discussion thread

What is meant with disability as identity? Does it just mean viewing myself as disabled?

Hi Accurately diagnosing CFS is not easy and it becomes more difficult when the person is mildly affected. In my opinion in your case one should maintain some suspicion that it's something else. There is certainly some similarity to CFS. It sounds like you need validation and encouragement to...

5 days have passed since the biopsy. I can walk without problems in the house, but I'm not supposed to use the leg much until the sutures have been removed. I've also become more tired than usual and need more naps during the day. I'm not sure why. It didn't feel like the biopsy caused a major...

I took part in this study and had low manganese.

Very useful observation, and good to have some statistical modeling. I've been thinking something similar for a while. My guess is that the misdiagnosis rates may be as high 25% even in studies conducted by people who are familiar with the topic. The remaining ME/CFS cases may actually be...

These microclots can't be the cause of PEM if they're found in other diseases not associated with PEM.

Since RA is not generally associated with PEM that suggests these microclots are not causing PEM (at least not alone). If we ignore that for moment, would it be plausible for PEM to be roughly this sequence of events? 1. A person that was resting begins an activity. 2. The activity also causes...

Having thought about this, I don't care if it makes no sense or doesn't fit with established knowledge. We need a replication to confirm or refute this. ME/CFS seems to be an illness where established knowledge is of limited use because it seems to be in its own distinct category, with some...

I hope this means that there will soon be a replication attempt. It does look like the kind of finding that would help us a lot in making sense of what is going on. In my opinion, microclots that impair microcirculation to some degree seems like it could fit with an inability to tolerate...

Mine involved a cut into the skin, and then parts of the muscle being cut out with scissors.

I thought it would be useful to have a thread for this. Muscle biopsies aren't currently considered useful in ME/CFS but they are useful in diagnosing other illnesses that might look like ME/CFS. Today I've had a muscle biopsy with 3 samples, in the upper leg. It was painful despite local...

The book has an Amazon rating of 2.6 out of 5 at the moment. I'm not sure how someone who did any research at all could believe that opposition to CBT/GET is a fringe movement among patients when researching this for 10 minutes should make it very clear that major patient organizations in the...

When your research is so terrible that your only chance to succeed is to silence patients... It does confirm that the BPS people are trying to oppress patients.

Professor van Vugt: “Just by looking at the muscle biopsies, you see that the firmness of the muscle is different. The firmness of the muscle has to do with the connective tissue, and there are now many theories about that.” My understanding is that the samples have been collected but there...

I wonder if the UK is heading towards a situation where LC ends up being neglected (because acknowledging its full extent is seen as too costly), and ME finally gets some recognition as serious disabling illness?

I don't believe this would be good. The BPS people would probably avoid open debate and conflict and instead misrepresent their own work and views, only to then later launch an attack in the press to try and force what they want. They are totally untrustworthy and unable to enter into...

It might be better to ask journalists to cover the roundtable session.