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  1. John Mac

    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

    I assume the Burton C is Chris Burton who has just been appointed to the NICE guidelines commitee.
  2. John Mac

    Cochrane ME/CFS GET review temporarily withdrawn

    Science journal to withdraw chronic fatigue review amid patient activist complaints https://japantoday.com/category/features/health/Science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-complaints
  3. John Mac

    Petition: [Finland] ME/CFS IS NOT A FUNCTIONAL DISORDER – WE CALL FOR APPROPRIATE TREATMENT [all can sign]

    Done
  4. John Mac

    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    Perhaps @Jonathan Edwards might like to respond
  5. John Mac

    Sick and disabled people will be paid £1BILLION of benefits they were denied as bill for DWP blunder explodes

    It affects claimants who were transferred from the old Incapacity Benefit (IB) to the newer Emploment & Support Allowance (ESA). They were wrongly put in the Contributory group rather than the Income-based group and so were underpayed to the tune of £1 billion...
  6. John Mac

    CFS/ME International Conference 2018 in Australia

    26-27 November 2018 Crowne Plaza, Surfers Paradise, QLD, Australia https://www.griffith.edu.au/griffith-health/events/ncned-cfsme-2018
  7. John Mac

    Event, Newry, N. Ireland: Dr. Jonathan Kerr: ME/CFS Subtypes & Targeted Effective Treatments

    DATE AND TIME Tue 30 October 2018 19:00 – 21:00 GMT LOCATION Mourne Country Hotel 52 Belfast Road Newry BT34 1TR https://www.eventbrite.co.uk/e/dr-jonathan-kerr-mecfs-subtypes-targeted-effective-treatments-tickets-51366273908
  8. John Mac

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Beadsworth is the doctor who first diagnosed me with CFS. Told me that they don't use the label ME because there is no evidence to support it. Also told me "don't be afraid of exercise" I'm sure he's hardcore BPS.
  9. John Mac

    Interaction between interpersonal factors and stress reactivity in chronic fatigue syndrome

    Recruiting a PhD student for a project An old tactic of theirs, trying to isolate us from the support of a partner. https://www.findaphd.com/search/ProjectDetails.aspx?PJID=101451
  10. John Mac

    Immunoglobulin for chronic fatigue syndrome (CFS/ME): systematic reference list

    The English summary suggests they didn't try to, but maybe our Norwegian members could read the pdf for us
  11. John Mac

    Immunoglobulin for chronic fatigue syndrome (CFS/ME): systematic reference list

    Downloadable pdf file is in Norwegian https://www.fhi.no/en/publ/2018/Immunoglobulin-for-chronic-fatigue-syndrome-CFS-ME/
  12. John Mac

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Done
  13. John Mac

    BBC trust me I’m a doctor tests a placebo for back pain and sees significant results

    This bit confused me Wouldn't people who are more "open to new experiences" be more likely to fall for a con?
  14. John Mac

    The effects of warm water immersion on blood pressure, heart rate and heart rate variability in people with CFS, 2018, Parker et al

    Is It? When was that decided, I must have missed the announcement. Edit: Beat me to it Wonko
  15. John Mac

    POTS – More Evidence That it is Autoimmune

    Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm
  16. John Mac

    Pitfalls In Cytokine Measurements – Plasma TGF-Β1 In Chronic Fatigue Syndrome

    Warning: It's co-authored by Knoop & van der Meer. https://www.prohealth.com/library/pitfalls-cytokine-measurements-plasma-tgf-%CE%B21-chronic-fatigue-syndrome-86479
    • John Mac
    • Thread
    • cytokines immunology knoop me/cfs measurement roerink tgf-β van der meer
    • Replies: 1
    • Forum: ME/CFS research
  17. John Mac

    Your gut is directly connected to your brain, by a newly discovered neuron circuit

    The second brain in our stomachs https://www.bbc.co.uk/news/health-18779997
  18. John Mac

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Event: Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm Mourne Country Hotel 52 Belfast Road Newry BT34 1TR https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century Edit: Video now on Facebook
    • John Mac
    • Thread
    • 2018 brian hughes david tuller hope 4 me & fibro northern ireland pace trial video
    • Replies: 135
    • Forum: Advocacy Action Alerts
  19. John Mac

    Defining the prevalence and symptom burden of those with self-reported severe CFS/ME: a ... community pilot study... (2017) Strassheim et al

    https://bmjopen.bmj.com/content/8/9/e020775
  20. John Mac

    U.S. Federal Register: CFS and Behavioral Risk Factor Surveillance System (BRFSS)

    Where does it mention CFS?
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