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  1. John Mac

    Crowdfund appeal to educate people with a duty of care towards ME patients

    https://www.crowdfunder.co.uk/tackling-the-mecfs-issue
  2. John Mac

    Prevalence and incidence of ME/CFS in Europe—the Euro-epiME study from the European network EUROMENE, 2018, Estevez-Lopez et al

    Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review https://bmjopen.bmj.com/content/8/9/e020817
  3. John Mac

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    I think this is the best thing about the statement. Can PACE claim to have any patient support now?
  4. John Mac

    Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from CFS/ME (2018) Cabanas, Marshall-Gradisnik et al

    It was mentioned in a Facebook post discussed here: https://www.s4me.info/threads/don-staines-and-griffith.5233/#post-94625
  5. John Mac

    BMJ: Pressure grows on Lancet to review “flawed” PACE trial

    A reply to the article: https://www.bmj.com/content/362/bmj.k3621/rr
  6. John Mac

    A new approach to find biomarkers in (CFS/ME) by single-cell Raman micro-spectroscopy, 2018, Morten et al

    http://pubs.rsc.org/en/Content/ArticleLanding/2018/AN/C8AN01437J#!divAbstract
  7. John Mac

    BBC: Why stealthy viruses are making you ill

    https://www.bbc.co.uk/news/health-45114842
  8. John Mac

    Scientist joins Sussex ME Society's advisory team

    https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspx As an MRC Clinical Research Training Fellow she recently completed her PhD in the relationship between joint hypermobility, autonomic dysfunction and psychiatric symptoms
  9. John Mac

    Marathon runner forced to quit work after developing ME claims diet change gave him his life back

    Interesting article on iNews website. Looks like he tried a variety of things so I'm not sure any one thing can be given credit, he may have just improved over time anyway. https://inews.co.uk/news/health/marathon-runner-quit-work-me-cfs-diet-change/
  10. John Mac

    Cerebral blood flow and heart rate variability predict fatigue severity in patients with chronic fatigue syndrome, 2018, Staud et al

    Another cerebral blood flow study by the same authors discussed here: https://www.s4me.info/threads/task-related-cerebral-blood-flow-changes-of-patients-with-chronic-fatigue-syndrome.3155/#post-56205
  11. John Mac

    Article: The State of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Research in 2018

    https://patientworthy.com/2018/06/04/state-chronic-fatigue-syndrome-research-2018/ Comments are allowed. Perhaps people could thank the author and add to the information in the article.
  12. John Mac

    Stop Exercising for Chronic Fatigue Syndrome Symptoms

    A good article on Your Care Everywhere website. https://www.yourcareeverywhere.com/health-research/health-insights/pain-care-insights/stop-exercising-for-chronic-fatigue-syndrome-symptoms.html
  13. John Mac

    Ex-Reporter Prevails In ERISA Suit Against Prudential

    I wonder if this evidence is coming from the NIH study in which Brian is a patient?
  14. John Mac

    13th Invest in ME Research International ME Conference - 1st June 2018

    An email sent out from the Open Medicine Foundation by Ron Davis A Glimpse into My London Talk Dear John, I prepared this statement for Ashley Haugen to read yesterday at the Western Massachusetts Department of Public Health screening of Unrest. This is new information from the Severely ill...
  15. John Mac

    Personality as a risk factor for ME/CFS and similar diseases

    I can honestly say I am the exact opposite of every single one of those characteristics
  16. John Mac

    Advocacy Alert: What’s Up TV Wants Your Voice for ME - Deadline is Friday 1st June

    The ME Association are highlighting the call for videos for the Sky One series What's Up TV http://www.meassociation.org.uk/2018/05/whats-up-tv-sky-one/
  17. John Mac

    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    54 MP's have now signed including my MP George Howarth (I only emailed him on Sunday so it's still worth trying) https://www.parliament.uk/edm/2017-19/1247
  18. John Mac

    This illness is sucking the life out of millions of people

    The Birmingham Mail is covering ME Awareness week with this story of a sufferer https://www.birminghammail.co.uk/news/health/illness-sucking-life-out-millions-14611319
  19. John Mac

    Legal Precedent against GMC in a child with ME!!

    The article is dated 1st May 2006. Does anyone know the outcome?
  20. John Mac

    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    The Liverpool Echo is giving the documentary a mention https://www.liverpoolecho.co.uk/news/liverpool-news/bootle-mum-who-can-only-14622794 They originally covered her story on mother's day (along with the Daily Mirror) Mentioned in this thread here...
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