I have wondered if we might be pushing our story too hard to COVID patients, especially early on. Easy to be seen as swamping that discussion with 'activist' agenda.
OTOH, they need this info.
It's a question of balance.
Even the good guys in this field seem to be really struggling with the idea that the activity limit in ME is not negotiable.
Doesn't mean it won't vary over time, or that by careful management and lots of practice patients cannot improve their situation over time and make the most of what they...
Strictly speaking, PACE showed that if deconditioning is part of the problem, then that version of CBT & GET don't fix it.
Which doesn't exactly give support to the putative role of deconditioning in their model.
A null result, I believe.
Don't even have to show that. Just have to show that...
If they think this is bad, then they are just going to love the vastly greater human and economic carnage after a year of failing to eliminate the damn thing.
History will show that patients have been remarkably restrained under decades of extraordinary provocation.
We are not the ones who have anything to answer for.
I think the most appropriate response to these claims is to demand an independent, high-level, and public formal inquiry into the...
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