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Frankly, you can find the same 'tools' on YouTube for free. No one needs to pay for this dross.

There's also this: https://www.ncbi.nlm.nih.gov/m/pubmed/23335743/ So it's possible the SSRIs are having an effect on enteroviruses, too.

Yes, I've found more info (plus a historic comment from Charles Shepherd) here: http://www.ibsgroup.org/forums/topic/42878-sertraline-treatment/ Perhaps I was too rash in denouncing this one, although I'm still concerned about pairing it with an antipsychotic (usually done only in schizophrenia...

I wonder if this article in the Telegraph is perhaps to blame for so many doctors trying Sertraline for ME? https://www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/3352290/Doctors-diary-extra-chronic-fatigue-syndrome.html

A quick Google of Sertraline for ME shows some worrying side-effects. In nearly every case, it seems the clinician is trying to treat co-morbid depression and not the core problem itself. In some, the clinician simply seems to be treating 'CFS' as though it is depression. I don't think it can...

I'm on the management committee of a charity. Basically, you can't be partisan. You can't tell people to vote Labour or Conservative, or seem to back one side over another, but you can still lobby for change. Otherwise, most charities would be useless (which they are, of course).

Done. Only took me 20 mins. It said it would take two hours--maybe we've rushed it? But I couldn't have spent two hours on it. It would have ruined me.

Is Tal still with us?

<3

F48.0 is 'fatigue syndrome'. It's technically exclusionary from G93.3 (postviral fatigue > benign myalgic encephalomyelitis, also known as CFS). The confusion is, of course, something they gleefully take advantage of.

He's a good man. Sharpe is just embarrassing himself.

I should add, there's an LDN medication tracking app too. It's being used to support future study (all subjective data, sadly, but I think it's a cheap/free way to add to the research literature while the funding comes for something bigger). I fill it in once a month or so, but you can set daily...

Yes, initially. There's an upfront fee of £35 for the consultation, then a cost of ~£20 each month, for three months' medication. It evens out about £35 per calendar month. That was enough for me to try it. I told my doctor, and they noted it on my file. You'll need a prescription to buy it in...

The proposed method of action is to briefly turn off endorphin receptors so the brain creates more. At full doses, naltrexone stops endorphins binding to receptors for longer periods, which is why it's used for opiate addiction (the opiates suddenly stop working). Neuropathic pain is supposed...

I think that part (LDN) was aimed at me! I think it has improved my pain. That's where the evidence seems strongest. I suspect it's for chronic pain where the microglia are inflamed, rather than pain due to the nerves, as that's the proposed method of action. But maybe the endorphins just make...

That's good to know at least. Obviously, presented as it has been, the comparisons look stronger than they are.

I'm keen to hear more too. There's just something about the tone of your posts . . . I dunno. It feels like someone really dug the Leeds centre's marketing spiel. After eight months on that ward, maybe that's to be expected. This may be incredibly rude and presumptuous of me (it is!), but it's...

Vitamin D supposedly helps LDN. As does clemastine fumarate. Since no one replied to this, I'll share my experiences. I went ahead and got LDN, and then told my GP. They added it to my list of medications so they could monitor me if needed (they haven't ever needed to). They even asked the...

Just weighing in on vitamin D: My whole family had low vitamin D (we're a dark-skinned bunch; my granddad is from St. Kitts/Caribbean). My mum (much darker than I am) experienced significant pain relief from upping hers. My level was 30.9, and now is over 120, but despite a reduction in shin...

Leeds is brill! (Says the man who committed the ultimate betrayal and moved to Manchester--though, in my defence, at least I'm in socialist Salford now I'm past my city-centre-living days!)