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Was this based on Dr David Smith's daft proposal that an SSRI (usually Prozac but also often Lustral) combined with amitriptyline (or another tricyclic) could 'cure' his patients? It seems popular with some BPS clinics, still. However, if patients didn't pace, this miracle cure would often...

The first link isn't working. Can you check it?

More importantly, if they insist on this stance *despite proper evidence*, will they make similar claims about homoeopathy and other poorly proven (read: disproved) treatments, based on the fact some patients claim to benefit from that too?

I think it was Virology Blog? I could only find this article, though: http://www.virology.ws/2014/10/08/the-incubation-period-of-a-viral-infection/ The incubation period varies from the one you and Hyde give (6-12 days, not 3-8). I'll keep looking.

Consider approaching university sports sciences departments. They may have commercial tests for athletes. It's easy enough to adapt to a two-day CPET.

Re: these incubation periods, do you have references for them? I've seen these claims made before, and yet I've also seen it argued that the incubation periods are outdated or otherwise disproven.

And yet, I've heard stories of people being sent on endless tests out-of-pocket, costing thousands of dollars. So it's apparently a mixed bag, which I think is fair to say, as we're talking about a very vulnerable population here. I don't dispute his intentions, but the road to hell and all...

Re @Trish's nice summary, I'd like to add one thing. While herpesviruses may not, alone, cause or perpetuate ME, I suspect that it's a hole-in-my-bucket scenario. One hole in your metabolic/immune bucket is somewhat easier for your body to plug by itself (or at least the leak of water, or in...

It looks like it's actually closer to £300 (because the prices given are for single tests only, and you need two).

Salford University will do it for £160: https://www.salford.ac.uk/health-sciences/facilities-and-services/exercise-physiology-testing-service. I'm speaking to them next week. They've read all the documentation I sent and seem quite confident about it.

Reading this back now, in fact, it really is a lot like the CCC and ICC criteria, which likewise group symptoms up into categories like this. The immunological symptoms are sort of scattered throughout the Ramsay definition, rather than having a category of their own, and the circulatory issues...

I think Acheson's description is quite a lot vaguer than Ramsay's. The latter seems much more precise: Disease in chronic state Once the syndrome is fully established the patient presents a multiplicity of symptoms which can most conveniently be described in three groups. Muscle phenomena...

I think many people are the same. That's why audiobooks are preferred to music for getting off to sleep. Perhaps it reminds us of our childhoods, if parents read to us? Or maybe it's precisely because it isn't repetitive enough to stick in the mind?

Agreed. Later today, I can dig up some local services that do this, if someone else wants to start the thread? Maybe after we've got the list together, we can collate everything into one easy document or web page with links?

As Jo said, there's an assumption that there was a negative finding somewhere which wasn't published. I think if it exists, that study should be dug up, because otherwise we're left always wondering. ETA: Though there are flaws in the 'positive' studies too, so it may be as much an issue with a...

The problem with Hyde is that he doesn't do peer-reviewed studies. He needs to do the damn studies, and then his so-called 'One True Way' to diagnose the 'Proper ME' can be put to the test. The cynic in me thinks that if he's the only person who can do these tests properly, then he's going to...

Well if it showed a negative result, I could either retest later, or celebrate the news that I may have something very treatable.

For anyone who wants the Salford link I found, it's here: https://www.salford.ac.uk/health-sciences/facilities-and-services/exercise-physiology-testing-service Would it be helpful to create a thread compiling CPET testing across the country? It might be cheaper for many mild to moderate...

I don't know why I didn't think of that! Salford Uni near me does this. Do you have a direct link to the protocol? I can't seem to find it among the papers at the Workwell or via Google.

I'm really interested in this. Would I just ask for a two-day CPET and they'll know what I mean? The only thing putting me off is the exhausting journey there and the overnight thing. It would be worth it for some useful evidence though.