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  1. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    @bobbler, the colour palette has changed completely in Windows since I last used it. It has settings called themes, which are accessed from Page Layout > Colours. The option to create your own set is at the bottom of the pop-out—it's called Customise Colours. You don't seem to get the colour...
  2. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I haven't used Windows for 10 years, so I won't have seen the latest upgrade, but I worked it out on a Windows machine. I've never used conditional formatting, I simply click on the Fill Colour button. This brings up the palette: I remember it looking slightly different on my work computer...
  3. Kitty

    UK: John McDonnell: ‘A moral, fair Budget would prioritise funding for M.E. research’

    My old friend knows him quite well, and says that as well as being a good communicator, he's pretty expert at being a thorn in the side of people who like easy compromises. As his party has a chance of forming the next government, his appointment as a champion for ME might be a smart move.
  4. Kitty

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    The whole thing's arse-about-face anyway. They shouldn't be focusing entirely on improvements, at least not in anyone who's been ill for more than two to three years. Real improvement is quite infrequent, so the aim and the measurements should first and foremost be about stability. Any...
  5. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    You can. I work on a Mac, so my screenshots and some options might look slightly different to the way they do on Windows, but there's rarely a big difference in the actual approach. Click on the fill colour picker and choose More Colours. A palette like this pops up: Choose the middle one...
  6. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    @bobbler, are you using MS Excel? If you are, you don't have to use the automatic colour sets. You can set the RGB balance and black level to anything you like. It's the More Colours option, then click on the colour wheel. (Sorry if you already know this.)
  7. Kitty

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    From @MSEsperanza: Apologies if that has already been posted—only able to skim but had a quick glance at some references in the paper and saw that at least in one participant-rated outcome measure, the item "minimal change" comprised all three: “a little better” and “a little worse" and "no...
  8. Kitty

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Sounds much better, but what about when they get to the point that they're no longer making management decisions? It's possible I've misunderstood some of the gobbledegook in the original text, but this is my concern. I don't see how the test can show whether the outcome is the result of...
  9. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    They might be, but even if they weren't, we still wouldn't be able to do it. Jaysus. How many different ways do we need to say this?
  10. Kitty

    Careers (and job) advice for people with ME/CFS (maybe particularly young people) - a discussion

    There are some professional careers that would be well suited to some pwME if they had the right skills. The trick is in picking a type of work where you can still maintain reasonable cognitive function even with brain fog, because you have a natural aptitude for it. My friend's sister is...
  11. Kitty

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    I'm guessing you only need to be a member of a special academy if you have particular sorts of ideas, since everybody else makes do with buses, pubs, and WhatsApp?
  12. Kitty

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    In't it funny how practically everybody in Britain doesn't need to join a free speech union?
  13. Kitty

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I do too, but forget to mention it as a symptom. It's been there every day of my adult life, so I can't even remember not having it. I think the 'poisoned' feeling may be different in me. Some people seem to experience it with every PEM episode, others get it whenever they have a more severe...
  14. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I agree. During activity started from a well rested state, my fatiguability symptoms are similar to those of 'flu, but aren't as severe at the outset. Activity attempted during a PEM state produces symptoms just like 'flu. The pattern includes that odd stage during recovery, where an activity...
  15. Kitty

    2024: USA NIH NINDS ME/CFS Research Roadmap - now published

    Thanks, @Ravn, I will. I guess I've already drafted most of the thoughts I had, so it won't take much longer to finish it!
  16. Kitty

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Great work, everyone. I've struggled to follow the thread because there are so many figures and graphs in it and I don't really understand them. I agree that the throwing out of one participant's results because he was smarter than they expected looks shonky, but I wonder if it's a distraction...
  17. Kitty

    Is there a constant anti-viral response?

    I agree. I have friends whose lives were more stressful than mine in some areas—bringing up children, or navigating difficult relationships—but they didn't have to survive a 40-year working life with ME. We're all very different.
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