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I agree, ordinary ME/CFS malaise (which I get every day) is very different to 'poisoned'. I get nausea regularly, but it's not the same thing (I'd just call that nausea). 'Poisoned' isn't even like food poisoning, because however unpleasant and prolonged the gastric upset was, I never got that...

I think that's well worth doing. I'e always assumed it's to do with severity, since the only times I've physically needed to lie down during the day were when I was very ill. I sometimes feel like lying down, but not enough to make it worth the discomfort—slouching will do instead. In reality...

I eat a lot of vegetables for the same reasons as @Hoopoe (plus I can't eat potatoes), and find exactly this. I can be painfully full from my main meal of the day, and then suddenly not, and then find it's bedtime and I'm starving—all in less than three hours. So I cut down on the vegetable...

I can't work out why is this thought to be news. I mean...why would anybody even bother to read to the end of the first sentence of an article, let alone give a flying you-know-what about it, with the world in the state it's in? Not Miranda Hart, of course (I don't really know who she is tbh)...

A bit hard to know, really. My threshold was low, the effects began quickly, and I don't drink quickly. With jenever, gin, or malt whiskey I might sometimes finish Drink No 1, but there definitely wouldn't be a No 2. With something in a bigger glass, I wouldn't even finish No 1. There could...

I'd be really interested to know too, as I've never known it triggered by anything I've eaten or drunk. But if it is sometimes a consequence of alcohol, it's probably unlikely I'd get it anyway. I can barely manage a single unit before the nausea, headache and muscle pain kick in—that's quite...

Not quite, at least not for me. Have you ever had to take a medication or been somewhere heavily polluted by smoke, so that it felt as if the substance had infiltrated every part of your body? It's that, on top of all the other symptoms of severe PEM. It's not an identifiable thing like smoke...

Yep. Also completely unethical to describe CBT as treatment for ME/CFS, for that matter.

It is interesting, but I wonder if long summer breaks in schools and universities have something to do with the reduced number of referrals? Young people are less likely to struggle with attendance if they're either already on summer break, or there are more gaps in their normal timetable...

Yes, I think so. To me, the overarching impression is that it's something that shouldn't be there, and that's why 'poisoned' seems to describe it. You know how when you're exposed to fumes, or you eat something bad, instinctively you want to get it out of your system? I drink lots of water...

I don't think it's necessarily linked to alcohol at all, so it may need a separate discussion. It's a feature of PEM for some people, and severe or long-term crashes in others. I've only had it in my worst periods of illness [edit: it persisted for months and was never a consequence of alcohol]...

The self-resolving nature doesn't seem to be covered nearly well enough in discussions like this. It's one of the areas doctors could talk about with real confidence, instead of theories about clots. About how some infections can involve an extended recovery period in some cases. About how...

I once had a long discussion about this with someone who got ill a bit later in life than I did, and he said the closest thing from his preME/CFS life was a hangover. He played in a rugby team in his teens and early 20s, and he'd had plenty of them after winning important matches. It's a strong...

It might also explain why I flush with even small amounts of alcohol. The sensation of heat isn't as severe as that I got during menopause, but the areas of skin that go a deep scarlet and feel hot to touch are the same. It's been pretty much a lifelong thing for me, though.

I find it hard to answer, partly because different infections come with different patterns, and partly because it tends to change during the course anyway. Often with a run-of-the-mill cold, I feel quite energetic and have trouble sleeping the first night or two, then as it progresses I sleep...

I start feeling ill within minutes of starting to drink alcohol. Nausea, headache, dizziness, heavy fatigue, generally snappy and feeling dreadful. I also get burning muscles, very like that of ME/CFS muscles that have been worked in the previous day or two. The type of drink's irrelevant. It's...

I just meant it's fairly common in conditions like migraine, 'flu, hangovers, etc. The level of sensitivity will vary, but most adults can probably remember a time when they wanted to draw the curtains against bright sunlight, or found noise from a construction site made them feel more ill even...

Do you think continuing to explore some of the symptoms that aren't typical of acute illness could be useful? What struck me about discussions of the drive to lie or sit down, the alcohol intolerance, the burning muscles, the poisoned feeling, etc., is that we need to work harder at describing...

No, not at all. The quality of sound and colour are noticeably different depending on which side is covered, but I think that's just decrepitude. Subjectively at least, the sensory intolerance doesn't feel much different to that of acute illness.

Speaking personally—and I only know two other people with ME/CFS, but it's been a lot of decades and we've covered numerous British cities and regions between us—the ME/CFS diagnosis has never been an issue when we had symptoms of things that weren't ME/CFS. I've acquired four other diagnoses...