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  1. Jonathan Edwards

    News from Scandinavia

    I am not sure how this fits in here. My point about things like IV saline is that not only are they not based on any evidence or any credible science but they are presented as some sort of alternative to conventional care that drives a wedge between professionals and ends up with disastrous...
  2. Jonathan Edwards

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    I came across this other relevant Cochrane review, which again shows just how intellectually broke they are: Conclusion: Amitriptyline has been a first-line treatment for neuropathic pain for many years. The fact that there is no supportive unbiased evidence for a beneficial effect is...
  3. Jonathan Edwards

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    It is driven by the Cochrane hierarchy's obsession with 'demedicalisation'. Anything that does not involve drugs, whether faith healing or exercise, is better than drugs. Unless of course the drug company is providing some help with funds...
  4. Jonathan Edwards

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    Yes, but there was a time when people used to distinguish first class shit from business class shit and economy shit.
  5. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Yes, well, academics are not supposed to do that - whatever discipline they might be in. They are supposed to know whether what they are doing means anything.
  6. Jonathan Edwards

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    They are just behaving like clowns now. I could not see any reference to blinding in this review. We really do live in a post-truth age.
  7. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Which tells you b***** all, and anyway they are different in different places in the brain. A real interpretation of an EEG is a bit like reading an orchestral score and picking out the harmonies.
  8. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    My worry is that people like yourself might actually think that the mind wave measurer had some sort of scientific basis and could actually measure something. The sort of equipment I think being used cannot possibly indicate anything about brain function. It is a bit like using a volume readout...
  9. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Fair enough but the mention of 'industrial partners' makes it pretty clear that this is being financed by the manufacturers. I have no doubt the researchers would like to think they are being helpful but then this is the problem with the therapists at Bath - and they like to think they are...
  10. Jonathan Edwards

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    I wasn't there but I had a sandwich lunch with David on Friday and provided him with an A4 copy of the SMILE trial for him to tear up on Saturday.
  11. Jonathan Edwards

    News from Scandinavia

    These are the things that worry me. As I see it the problem here is that because of disagreement between health care professionals children and young people are being taken into care. That cannot be right. If there is justification for discontinuing the treatment received in the private sector...
  12. Jonathan Edwards

    Denmark: Interview with Per Fink in Dagens Medicin

    Yes, thanks. There have been emails.
  13. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    But what is they see and think they understand what is important but in fact none of it is important!! Who decides whether they have understood what is important?
  14. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    Well the chap in charge has on his personal page: We aim to deliver next-generation project dashboards and data visualisations that can identify potential project issues, improve productivity, and improve the management of aspects such as intellectual property, risk and cost. I can see a value...
  15. Jonathan Edwards

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    I don't understand what makes this academic research rather than market research for some electronic devices of no known medical validity. The brain wave device looks complete quackery.
  16. Jonathan Edwards

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Naltrexone hydrochloride (NTX) acts as an antagonist to the μOR thus negating the inhibitory function of this opioid receptor on TRPM3. Therefore, understanding the mechanism of action for NTX in regulating and modulating TRPM3 channel function in NK cells will provide important information for...
  17. Jonathan Edwards

    Functional movement disorders, 2019, Galli et al

    I disagree here. What is meant by incongruent or inconsistent is that findings on a full neurological examination are not all consistent with the same sort of neurological lesion. As an example, a person with a sudden onset of right sided arm and leg weakness and difficulty speaking with loss of...
  18. Jonathan Edwards

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Absolutely. I was not aware of any hostility to Phil in recent posts. The truth needs to be spelled out but I have not seen anyone being personally unreasonable or hostile.
  19. Jonathan Edwards

    Action for M.E. 2019 AGM and conference 15th October 2019

    Keeping bureaucrats employed.
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