Search results

Hypothesis: Since loss of smell comes on so quickly in people who get the COVID infection, and goes away as soon as the infection is gone, and can persist in Long COVID, maybe this points to the virus directly causing anosmia and continuing to stick around to cause it in LC. Viral persistence...

Olfactory bulb involvement in neurodegenerative diseases, Johannes Attems et al, 2014 Apr

Thread about loss of smell on Phoenix Rising where a couple people say their anosmia started around the same time as ME.

Oh Todd Davenport actually chimed in for #JohnVsJonVsME:

That's really great that they shared that. Todd Davenport said it really well on Twitter: ME inherently makes it hard for the world to know what it is like for a person experiencing it, because it makes the person hide from the world. But thanks to internet and smartphones becoming so...

https://x.com/i/spaces/1yNGaZWVbOVJj A recording of a one hour Twitter live voice session from the organizers of this. They discuss this campaign as well as the historical medical scandal surrounding ME/CFS.

Like and repost tweets here: #JohnVsJonVsME

12pm eastern, so in 4.5 hours.

COVID-19–related anosmia is associated with viral persistence and inflammation in human olfactory epithelium and brain infection in hamsters

Oh sorry, I should change the wording. I should have said "before COVID pandemic" to rule out the possibility of those who got it from COVID. Meant for anyone that has anosmia and ME and knows it's not caused by COVID.

Those without comorbid depression are motivated to do more than their body allows. They either fight the motivation and pace, or give in to it, then crash.

I just made the connection that maybe my life-long poor sense of smell and taste is related to ME/CFS. It's common in acute and long COVID, so maybe I have a subtype that is somehow similar to those with LC. Anyone else with non-COVID-related ME who has long-term profound lack of smell and/or...

I asked the Morten Group about this on Twitter: Though I'm not too hopeful they'll respond as they didn't respond to a similar tweet about their test set methodology from over a year ago:

I saw that there's a planned Twitter campaign for May 31st to make posts to try to get John Oliver and/or Jon Stewart to cover ME/CFS on their shows. I would love to see John Oliver cover this - it seems like the perfect type of content for his show.

It seems like they did have a test set - 20% of the samples - and this is what the accuracy figures describe: The figures above are called confusion matrices (good chance @chillier you already know what this is if you are proficient in R, describing for others). The squares on the diagonal...

"Research Updates from the Melbourne ME/CFS Collaboration" from OMF's YouTube channel I fed the transcript of the above video to Claude (AI like ChatGPT) to create a bullet point summary. I think this is an effective way to allow people without the energy to watch the video to know what it's...

At least two trials are testing nicotinamide riboside (one of the chemicals in the treatment) in long COVID: Clinical Trial of Niagen to Examine Recovery in People With Persistent Cognitive and Physical Symptoms After COVID-19 Illness (Long-COVID) - Study completed 2024-02-23 Mental...

I don't know if Long COVID is the correct forum to put this in, since the study was about recovery from acute COVID. But I think it's possible that something that helps people recover from the acute disease could help with LC. Study

Linking the thread @Hutan made analyzing some of the literature on CoQ10 for ME/CFS and related disorders, showing that basically no effect has been shown in high-quality studies so far.

I tried with Claude.ai. I had it rewrite multiple times and all the answers varied a good deal, but it wasn't like "CFS" always made it more of an advocate for Wessley's views. Your theory does make sense, but there's also a chance the first answers you got happened to fit well with that...