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  1. forestglip

    Resources on why the Name “CFS” is problematic and “ME” or “ME/CFS” is recommended.

    Wikipedia has a short summary in the Naming section: Or if you're okay with just sending them what an AI said, I think this came out decent, and it also provided some references that might have something good:
  2. forestglip

    Modern environmental factors

    Thanks, will check it out when I have more energy! Link to the referenced talk (starts at 17:25)
  3. forestglip

    Modern environmental factors

    The previous map was from 2022. I found CDC Long COVID Household Pulse Survey, which is done around monthly, up to last month. These aren't exactly beautifully uniform between months. Flipping through months, I can't visually see any regions or states that are consistent. March 5, 2024 - April...
  4. forestglip

    Review Interdisciplinary, collaborative D-A-CH consensus statement concerning the diagnostic and treatment of ME/CFS, 2024, Hoffmann et al [German]

    It at least includes all the author institutions: Link to full computer translated article
  5. forestglip

    Modern environmental factors

    Yes, that does make sense, thanks.
  6. forestglip

    Modern environmental factors

    This all makes sense and I'm pretty much out of energy to comment on anything, but thank you for your input. Though just to reply to the "temporary remission" part: I've also had "temporary remission" from adderall. Relatedly, anyone with depression can get temporary remission with MDMA. Can...
  7. forestglip

    Poll: What is your most disabling symptom?

    Cognitive impairment probably. At least if it was only physical fatigue, I could still do online classes, do remote work, or have conversations longer than a few sentences.
  8. forestglip

    Modern environmental factors

    All good points, thank you.
  9. forestglip

    Modern environmental factors

    That's true, I'd love to see more research in this area as well.
  10. forestglip

    Modern environmental factors

    I don't know why you would call this disinformation. Was anything in the chatbot's reply inaccurate or even misleading? It's not a source of hard evidence, I was using it to generate hypotheses. That's true, I couldn't find any direct evidence of medical organizations recommending to avoid...
  11. forestglip

    Modern environmental factors

    That's if we know what environmental factors to look for. It might vary by exposure to industrial chemicals, which might not necessarily be obvious in location data. Maybe around half of most every region, every city, every neighborhood in the country by chance happens to use some specific...
  12. forestglip

    Modern environmental factors

    I don't know specifics and haven't researched it myself, but as a starting point, I just asked claude.ai, and this seems like a significant influence of modern environment: "do any of these have good evidence for being at least partly caused by modern environmental factors, like chemicals or...
  13. forestglip

    Modern environmental factors

    That's totally possible, thanks for the perspective. One of my main objections would be that it as far as I can tell, there is no evidence of significant prevalence of any ME/CFS-like disease in any wild animals. I asked a chatbot if they knew of anything similar: "are there any example of...
  14. forestglip

    Modern environmental factors

    CDC: Notes from the Field: Long COVID Prevalence Among Adults — United States, 2022 Prevalence of reported experience of Long COVID among adults aged ≥18 years, by jurisdiction — Behavioral Risk Factor Surveillance System, United States, 2022 Abbreviations: DC = District of Columbia; GU =...
  15. forestglip

    Modern environmental factors

    To add a bit, if my reasoning for it being unlikely that multiple different pathogens can be the root cause has some merit, then COVID would almost certainly not be a root cause, and is only exploiting a weakness opened up by previous insults to the body. Therefore, it may be highly valuable to...
  16. forestglip

    Modern environmental factors

    You should be able to click the title in my last message. But here's the URL: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7290765/
  17. forestglip

    Modern environmental factors

    Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology, 2020 It seems they weren't able to get much high quality data for Europe in 2020.
  18. forestglip

    Modern environmental factors

    Yes, I don't think there's anything special about ME in this regard. Different genetics among the population could let the environment mess us up in different ways. That's unfortunate and would be the first place I'd look if I was pursuing an environmental factor. Though do we have any data on...
  19. forestglip

    Modern environmental factors

    That's true, and I think the work should continue. But I think we should hedge our bets in case it is significantly environmental because trying to play detective with genes and blood feels like a much more roundabout, murky way of pinpointing an environmental cause, versus trying to see the...
  20. forestglip

    Modern environmental factors

    I don't discount random internal events, and would be happy to say "genes + environment + random internal events" is the cause. Though, I don't think these random events by themselves would be the main or only cause, except in rare circumstances. I haven't extensively studied paleolithic humans...
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