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Canadian research It's good that a study of the impact of vaccinations on Long covid has been done, as there has been a lot of speculation. But, this design doesn't allow the authors to make the claims that they have in 'Highlights'. With no controls, we can't know if the time elapsed between...

This is a good point: I think this document is good as far as it goes. However, it does not address recovery in the first two years of illness. We know that many people who would meet ME/CFS criteria other than time requirements do recover before the 4 or 6 months required for diagnosis. We...

I agree. I admit, I haven't read the paper, but the first sentence had me sighing. Perhaps there is some truth in the paper, but I don't think it will be a truth that has not already been speculated about. And any truth is bundled up with statements that are either just wrong or should not be...

Perhaps an even more apt metaphor is that they produced shit a while back, and they've been hovering protectively over it ever since, refusing to let anyone flush it away.

There is quercetin in food, and a healthy diet would give a person quite a lot of quercetin. But the 500 mg dose used in the study would be hard to achieve from a good diet. From what I can see, onions have a high amount of quercetin, but you have to eat 1 kg to get 300 mg. One apple is...

It claims to be a double-blinded study and the size of the study is ok. There seem to be significant differences between the treatment and placebo including a large difference in an objective measure - number of steps (so long as that number of steps is a daily measure). So, on the face of it...

Nice to see a null result stated clearly in the abstract. Assuming the methodology was good, this paper moves our knowledge of Long covid forward.

I like what you did there. It is also interesting to think about the role of the IAG. If part of the role of the members of that group is to advise the review process, it is hard to understand how they can effectively perform that role if they feel gagged, unable to report to and consult with...

@Jaybee, for those of us not on twitter, how does this work? Is it a webinar type-thing, or just posting on twitter? Do you have to be signed up to twitter to participate?

In happier news, many thanks to Physios for ME for their support of the open letter and for their advocacy efforts. :emoji_bouquet: (added to the organisation list above)

The forum has had a reply from BACME, the British Association of Clinicians in ME: As far as I know, Cochrane has never said publicly that the review had been paused. Or, for that matter, restarted. So, if BACME is well informed, it seems that a review process that was aiming to be a model of...

Does anyone else find the choice of the word 'trait' rather odd here? * a distinguishing quality or characteristic, typically one belonging to a person. Similar: characteristic, attribute, feature, quality, essential quality, property, distinction, idiosyncrasy, peculiarity, quirk, foible...

I thought when I read the article that it didn't accurately represent the interview. But there was the odd questionable bit and some inconsistencies in the interview answers.

Could the issues not just be explained by a combination of ME/CFS (whatever the pathology of that is) and a lack of regular practice? (i.e. speaking with people, especially speaking with people you aren't familiar with and about topics that aren't every day ones). A family member had a vitamin...

Here's an up-to-date list of organisations who have supported the letter. It would be great to get some more. Many organisations can't make a decision until their next board meeting, so we may not hear for a month or more.

Yes, the idea of this isn't terrible. But even the gender ratio of participants points to a problem - 87.4% female. While females may perhaps be more likely to have a chronic health condition, I think that ratio suggests that males are a lot less likely to sign up for 'self-compassion...

The people at ANZMES mean well but the organisation has problems. That last video demonstrates some of them. It's old news, but what was Auckland ME is now ME Support and they clearly have big ambitions, including extending their influence beyond Auckland. They come across as professional...

There's just been an interview of Professor Lisa Sanders, of Diagnosis fame, who is now running the Yale Long Covid Clinic. Sunday 17 September Radio New Zealand - If I remember, I'll add a better link when it is up...

I assume the improved cost effectiveness is due to the lower number of sessions: In which case, the logical thing to do would be to see what happens if the number of sessions is reduced further... and further. Actually I can imagine this sort of treatment (the CBT and/or ADepT) being useful...

I'm curious why you are sceptical about the inclusion of Long Covid in the scope of an ME/CFS charity. For me, including it is warranted on both moral and self-preservation grounds. If Long Covid is excluded, then it's hard to see how an ME/CFS charity could survive in the medium term, as most...