Search results

From @Tapanui 'Flu's excellent blog: "The University of Otago’s Medical School had undertaken a survey, and concluded that “…the clinical picture in the majority of the 70 patients studied is entirely consistent with the diagnosis of myalgic encephalomyelitis.” One of the findings of the survey...

From the NZ news thread:

Thank you for posting @Tapanui 'Flu! Very interesting. We have a thread dedicated to the outbreak here: Tapanui Flu which already has some of your content I think. I'll copy your links to that thread, so people can easily find them again.

That average reported reduction (from moderately ill to mildly ill) is in line with what we might expect to see with a placebo. From the The Clinical Global Impressions Scale - a description of the measure. The measure is a 'instrument' developed for busy clinicians. It's a single question...

This thread has links through to the March 2024 Scottish Covid-19 Inquiry. Scotland: Dr Claire Taylor - ME/CFS and Long Covid Looks as though good submissions have been made about Long Covid.

British Columbia Generations Project (BCGP) 30,000 people, completing regular surveys, and linked to their health records Yes, that's a great idea to give them all the diagnostic surveys and see what percentage of the people assessed as having ME/CFS have a diagnosis.

It's an interesting listen - the perspective of a doctor with some experience of ME/CFS and with some sympathy and understanding who reacts to the absence of NHS Long Covid care, and her inability to provide such care within the NHS by setting up a private practice. On the whole, very good and...

That's a great summary @ME/CFS Skeptic. On the possible underestimation of the 0.4% prevalence: I don't know about that Project, but possibly these people, being part of a longitudinal project, might have been more likely to have got a diagnosis of CFS or ME/CFS if they had a significant...

OMF announces an itaconate shunt study: The itaconate shunt hypothesis

I think it would be reasonable to expect the MEA and investigators involved to make their BACME presentations publicly available. Maybe that is something worth asking the MEA to do?

Wonderful comment from Cindy Bateman towards the end that people who have been sick with ME/CFS for 10 or even 30 years are not impressed with clinical trials of exercise or sleep hygiene. Koroshetz came across much less well than the three woman; he seems not to have learned much about ME/CFS...

Re the presentation to NANDS Council about the Roadmap presentation. Vicky Whittemore, Maureen Hanson and Cindy Bateman are doing very good work to move the understanding of ME/CFS forward. In the questions there was good focus on biobanking, including post-mortem samples. Also on patient...

Yes, I'm impressed too. Does anyone know the background of this consensus? e.g. who organised it, what notice might be taken of it when it comes to official national clinical guidelines?

Impressive new consensus statement for Austria, Switzerland and Germany (in German) Interdisciplinary, collaborative D-A-CH consensus statement concerning the diagnostic and treatment of ME/CFS, 2024, Hoffmann et al [German]

Impressive new consensus statement for Austria, Switzerland and Germany (in German) Interdisciplinary, collaborative D-A-CH consensus statement concerning the diagnostic and treatment of ME/CFS, 2024, Hoffmann et al [German]

A good blog from Cort about NIH support of ME/CFS research (more accurately, the lack of it). Includes an interview with Vicky Whittemore, who does her best for ME/CFS in difficult circumstances. Vicky seems to be hoping that some small businesses will move forward on clinical trials. I just...

I've made a post here about the film:Unrest film - Jen Brea That's a good thread to continue the discussion about the film. On alternatives, I was looking for a good video that introduces ME/CFS recently and didn't find a good recent and sufficiently detailed one. The Broken Battery videos are...

On reading this thread (currently with posts only up to Nov 2018 - we might merge some related threads into it) I see that there is no negative commentary about the film, which I don't think accurately conveys the range of reactions. I think there has been some discussion on other threads...

Well done @Yann04! (Just on Unrest, and not wanting to take this thread off-topic, there are different opinions about the film. It may not be the best thing to recommend when advocating; I personally think it can be counter-productive. I'll find a thread that discusses it and link it here.)

:rofl: