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Merci, Cheshire. Thanks. There's a few I know who have been ill for a long time.

Thank you for saying so.

Thanks, Trish. Good of you to say.

Thanks. Kind of you.

I'm on BBC Wales at 4:40 discussing illness and this paper. https://www.bbc.co.uk/programmes/b0079gdh/broadcasts/upcoming

Radio 4 at about 08:50 on the Today programme.

I take a much less charitable view of this study than many here. I think it's garbage and irrelevant to ME and welcoming it is a trap. First, it's not about ME. It's about fatigue after interferon. Second, why do some people have overactive immune systems? Well, because of personality type...

I haven't seen one. I was just told about the briefing.

They did. Friday morning briefing.

Yes, briefing given by Pariante and Russell on Friday morning.

This is the Pariante study. It was released to the media before the weekend and embargoed till midnight tonight.

I do think that was the case. It may be true that newly diagnosed patients would be willing to try anything including GET, but ME is not a new illness and there were many who had been ill for years or decades by the time the trial started. We knew there was no treatment, so wouldn't have wasted...

I think you're right, Michiel. In fact, that was pretty much my view when I first started learning about the trial. They loaded all the dice in their favour and still all they found was a small, temporary, subjective improvement in a small number of patients taken from those well enough to...

When I open the page in Chrome, I'm asked if I want it translated.

News has come today that the family died by their own hands, and that this was related to the daughters' diagnoses of ME. Warning The news report contains distressing details. https://www.aftonbladet.se/nyheter/krim/a/8wdBJ1/polisen-sa-dog-familjen-i-bjarred An 'In memory' thread will be set...

It's interesting that this is signed by both BACME and the CMRC, as one person is a member of both, Gabrielle Murphy, who is also a member of the NICE Guideline Committee. So she has agreed all the facts of the statement. That may be of interest to patient reps on the committee.

Great work, @Webdog Thanks very much.

Odd then really he didn't just put his name on the article. Oh, well. Up to him I guess and it is a good article, I think.

Thanks @Lucibee I was being lazy and that's saved me some work. I have an idea... More to be revealed in due course. Hehe.

On a slightly different note, would anyone be able to link me to the Research Ethics Committee responsible for the PACE trial, please?