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Sad isn’t it - there isn’t even the benefit that at least it attracts out the dark personalities who don’t want to do real science into the pseudo area of medicine where only those unlucky enough to have got dumped under the dregs have their lives ruined and personality etc attacked. I mean at...

Has anyone actually done prope experimental trials looking at the harms of treating people with any condition (and I’d suggest adding in a mental health to be balanced eg ‘health anxiety’ and physical health one and ‘healthy control’ as well as then having controls where they don’t get...

As an aside, reading this one made me have a look at the following. I haven't added it because even though search doesn't bring up an entry here I wonder whether I just mightn't have found the right term: PACE trial authors continue to ignore their own null effect Vink (2017)...

Glad to see this one and get this reminder of how simple and straightforward the facts are of what people have done and where the line is on this. Is this from the time when a whole issue of Journal of Health Psychology was devoted to critique of PACE methodology etc? (as if that even half...

It is just incessant isn't it, pulling teeth to get anything down or they make a tiny inconsequential change. New things go up that are wrong. You wonder whether they know how wrong and damaging all of this is or if they live in a world where they genuinely think this is 'help' of some sort...

I probably haven't thought through the words for the analogy being relevant well enough but I have a picture in my mind of those kits you used to get many years ago as kids where you poured a certain liquid onto cardboard and it 'grew a furry tree'...

Agree I felt a lot better about this when I read 'double-blinded'. Not sure about the 4 weeks if LC is a condition like ME, given that there are so many things we could consume or do or have done to us that might just 'jolly the adrenaline' or 'give a sense we are suddenly on top of it'...

yep they are just writing their quotas that they want filled by priming ‘you should be seeing x number’ then suggesting ‘and if you aren’t keeping up then may I ask you to turn your attention to young women who might seem emotional or aren’t but you can make em seem/see them as potentially that...

I think when it is targeting pushing buttons on tropes then ableism doesn’t cover it - and it is pure attempts at what do we call it inciting disability discrimination, dislike, disbelief being taught to weaponise mental health labels to cover these plain sentiments (remember this of course was...

even more worrying if it was around the time there were genuinely ill young ME patients in hospital in the media and social media.

Agreed. And the old guidelines and pathways suggesting to avoid investigations in patients (meant and interpreted as it being like encouraging hypochondria in people they never excluded anything for before binging that label on) or assumption that anything found ‘wasn’t of note’ has pushed this...

I think underlining this, and the chilling effect it has on future applications being made by others or supported by the grant support mechanisms, other people avoiding the area for their projects or specialisms and so on, shows how important just having a list of ‘could have been’ research...

Good that CC are looped in on evidence of timings regarding when their search for impartiality began - do they provide expected timeframes of the different parts of the process for any types of complaints?

Keep going, this is important stuff to watch - all the aspects about how this is approached and decisions made says a lot about a lot, certainly at this stage, and it sounds like she is at least aware of that?

Agreed that the skin idea sounds more feasible for witch hazel, when I was a youth we all had a stick of it for spots or any cuts or grazes, stings but works wonders. I can not imagine putting it near the eyes though. Only other possibility would be like smelling salts for the loss of smell or...

In fact this would be a good one to unpick with regards 'causing harm', if of course I managed to phrase it in such a way that a layperson could relate to (!) - to me it almost reads like a ready-made Monty Python dead parrot sketch. If you think of it in a layman's conversation or being...

This is pretty pertinent as a reference to bear in mind guven discussion in last year on measures. Global judgement on whether you are back to old self being totally different to what some of these questionnaire-based measures get as results for same person surely shows such questionnaires...

Scanning through the first one I recognised the name of was Piers Corbyn: https://en.wikipedia.org/wiki/Piers_Corbyn I hesitate to make assumptions based on one individual member of course, and only really know that from certain recent 'campaigns' The name of the organisation itself rings a...

Yeah I think you gave that away with the line: Worth checking that this 'accidental hit reply instead of forward' wasn't the one that you noted:

I'm so sorry to hear this.