Search results

  1. Snowdrop

    The Conversation: "The scandal that should force us to reconsider wellness advice from influencers" May 2019

    Women's Weekly opined that maybe she has an illness that causes her to fake illness. :rolleyes: Did they really have to go there? Why can't she just be a greedy and/or attention seeking self-serving scam artist who doesn't care about harming other people? I find it immensely unhelpful to...
  2. Snowdrop

    New Zealand: ANZMES

    You might be thinking of Elie Wiesel's book series 'Night' 'Dawn', 'Day'?
  3. Snowdrop

    Daily Mail: Three ME patients reveal the accusations they have endured

    Yes, I hadn't been thinking of anything other than comments after news items. I'm not on facebook or reddit so that could be a different issue.
  4. Snowdrop

    Daily Mail: Three ME patients reveal the accusations they have endured

    BPS must be reassessing their strategy. I expected a huge push back from them during Millions Missing. A few weeks ago is already lost to the fog of memory for me but I don't recall a lot of negative press. It seems they realise that being antagonistic is not going to score them points. I...
  5. Snowdrop

    Psychometric properties of the Cognitive and Behavioural Responses Questionnaire (CBRQ) in adolescents with CFS, 2019, Loades, Chalder et al

    From the link in the science library: https://kclpure.kcl.ac.uk/portal/files/45224441/2015_Lievesley_Kate_0959189_ethesis.pdf
  6. Snowdrop

    Where is this sophisticated research CDC's Suzanne Vernon said she was doing in 2005? what happened to the work and results?

    Since the research was ongoing at the time (2005) it could be that the publication date was a few years later. I found this from 2008: https://behavioralandbrainfunctions.biomedcentral.com/articles/10.1186/1744-9081-4-44 but of course I'm not sure if there is something before this one.
  7. Snowdrop

    Psychology Today: A Revolution Is Happening in Psychology. Here's How It's Playing Out

    I admit I had similar thoughts on reading. Once upon a time I most definitely would have read this with optimism that change was happening. Words are not enough anymore. Psychology depts at Universities would seem to be great cash cows bringing money in. Journals proliferate to accommodate...
  8. Snowdrop

    Crowfunding for a study about etiopathogenesis and try to set potential biomarkers

    For whatever reason the Frontiers link did not work for me so I'm relinking here in case any one else has a similar problem: https://www.frontiersin.org/articles/10.3389/fimmu.2018.01028/full Is this the article? This is the error message...
  9. Snowdrop

    UK: Healthwatch Lancashire, ME/CFS Report, June 2017

    Thank you @Esther12 It is now captured.
  10. Snowdrop

    UK: Healthwatch Lancashire, ME/CFS Report, June 2017

    @Suffolkres I get a blocked report on the tab when trying to click on the link. I'm not sure why this is. It could be because I'm not in the UK. I can read the PDF download of course but the reason I bring it up is that I wonder if the link to the document (not the download) has been saved...
  11. Snowdrop

    The Independent - What are the symptoms of ME and how is it treated? May 2019

    It's awful enough that it's not worth clicking through. There is no opportunity to comment either. Pathetic news coverage.
  12. Snowdrop

    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    @InfiniteRubix You could start your search in the science library: https://www.s4me.info/threads/publications-from-the-pace-trial.60/
  13. Snowdrop

    Crowfunding for a study about etiopathogenesis and try to set potential biomarkers

    Hello @Notjustfatigue Welcome to S4ME. My thinking on this is that if the people mentioned have an earnest desire to find solutions they may want to take a moment and rethink. I understand the urgency they may feel. ME is life altering. All of the people you mentioned whom we have donated...
  14. Snowdrop

    Building an evidence base for management of severe ME (including sleep management)

    Haven't read all the comments but if it's simple practical advice that is being sought for consideration -- to get off the sleep issues what about hydration? If people are severe they may not be hydrating well/enough. I don't know what is optimal for this -- I can't drink the recommended...
  15. Snowdrop

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Vogt made a comment about how the poor could not afford this. I'm all for this type of consideration but as I skimmed the article I was thinking how this is the real future of medicine (I mean that in the sense of real contribution to what keeps us healthy) it might even become real in the this...
  16. Snowdrop

    Need help with poster for Millions Missing event

    Perhaps it's not appropriate or a bit over the top but I think people are absolutely drawn to the word SCANDAL
  17. Snowdrop

    A reduction in pain intensity ... associated with improved physical functioning in frustration tolerant... chronic pain patients, 2019, Ribera et al

    Again and again we are presented with research that shows clearly that psychologists impose their POV onto the people whose issues they are studying. They are very much stuck in the if this was me this is how I would fix it. They come into the relationship fully blinkered so that they don't...
  18. Snowdrop

    The Week: I'm a 40-year-old stay-at-home kid - and it isn't so bad

    Is Diane Shipley the author and the person in the story?
  19. Snowdrop

    News from Scandinavia

    I remain completely confused by all this. Why would people switch their point of view to something so utterly against all patient interest. Especially at this time. It suggests that those who changed never had any deep grasp of the subject matter around ME. Is money somehow involved?
Back
Top Bottom