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This could be a different tack. Ask whether MS believes it's OK for people with ME to donate blood or organs for transplant. ETA: on second thinking he might just say he hasn't the expertise to judge yes or no.

I know that there are some videos out there about what is wrong with PACE and they a very good and clear about the flaws but I'm wondering if maybe a similar styled video (talking head) answering questions that respond point by point to this video would be a really good investment. That is...

@Inara I had a look but could not find the MS quote. It was from a tweet in response to someone and I think was posted in one of the PACE threads. @Lucibee might remember perhaps.

@Inara I was thinking too for people who you know you might consider sharing the letter Anne Ortegren wrote before she died. For me it tends to make clear that her struggles with health were not psychological but a very serious physical disease. Just a thought. I think I'm all thought out...

It would be quite the effort to translate any of this stuff. My understanding is that many Germans especially professionals have excellent english skills.

You can also provide the German Health Authorities and others with the Special edition publication of Health Psychology Journal that demolishes PACE along with David Tuller's blogs.

Not thinking very clearly here. So I expect you were suggesting that the studies would prove ME is real in which case the compilation by Jaime is a good one. So now my Question would be what authorities? I don't think that most people will bother to take the time to educate themselves...

@Inara I think my answer would be to first ask what the goal is in sharing info. That would then better define what info might be best shared.

Hi @Inara Would this be useful? http://www.meaction.net/wp-content/uploads/2015/05/ME2FCFS-RESEARCH-SUMMARY-Jamie-Seltzer.pdf

So we're back to wouldn't it be great if critical thinking was taught in grade school. Some people manage to come by it naturally they are sceptics. Others need to have their optimism and enthusiasm tempered maybe.

Yes, I believe that in order for his sense of self to remain in tact and healthy he is able like anyone to use language and concepts in a special way that can be reframed to continually mean the same thing (his original belief) but update the package as needed. So having people with ME in the...

He's a Commander of the British Empire (CBE) I think the body responsible for handing out shiny gongs needs an office of Integrity to do due diligence. Kinda like a Devils Advocate.

Hi @Sasha I know I started this thought so I hope someone more in the know steps up to confirm or deny this with more details because when I read it I found it to be an interesting finding. Sadly that small detail is all that (I think) I'm remembering. Information flows through me like water...

I guess the Omega 6 thing is not a solid conclusion perhaps. Or alternatively said as; just because I remember something doesn't make it so. :unsure:

Yes, it would be very welcome if our GP's would provide us with treatment options. On the other hand we are not a basically healthy but aging dog so not a real comparison. I read recently somewhere (sorry it's all vague except the conclusion I read) that I believe Ron Davis said that he found...

I am very interested in this topic but know utterly nothing. I would like to ask for anyone who can answer. Is there such a thing as a guideline for peer reviewers. And if there is not would such a (well thought out) guideline be of any use? I'm not thinking of boxes to tick but a statement...

Yes, I see your point. So the problem needs a fix from a number of fronts then?

Yes all true. I think though that the difference we're seeing is in the numbers involved. There were/are very dedicated people who have been hacking away at the indifference and neglect of the ME community. I'd name names but I'd forget some no doubt. But however many there were they were...

I know so little of this area but maybe a solution would be to have Statisticians as first line reviewers to review the technical aspects of a paper then the follow up (peer)reviewer would be required to bear in mind that first review of the strengths weaknesses and possible flaws of the methods...

John Oliver knows how to nail it. I've seen this one before but worth watching again. At about the 14 min mark he makes some very good observations about why it matters when we play fast and loose with science. There can be some pretty big consequences.