Search results

I'm really saddened to see that they're presenting ME patients as anti science. Just for being critical of a study where the effects of a product will be researched by one of its biggest salespersons. A product patients have reported being harmed from. ME patients are doing an enormous effort...

In a previous presentation of the planned study, the intervention group will participate on a Lightning Process course, and the control group will also participate on a Lightning Process course, a few weeks afterwards. But in this article prof. Wyller says that the study will be a randomised...

Follow up article in Dagbladet today where the experts who want to carry through with the Lightning Process study answers to some of the criticism against the study. It is about a petition against the study, which is mentioned earlier in this thread. When the article was published, the petition...

yes. And they never used the word "patient" about people with ME. Maybe "patient" is too close to people in need of medical treatment with documented effect based on high quality research..

Article is now online Dagbladet avslører: ME-striden Frykter ME-syke skremmes til å droppe viktig behandling google translation: Dagbladet reveals: The ME battle Fear ME sufferers are scared away from important treatment

The Norwegian ME Association has hired a new health professional adviser and wishes MD Nayana Geetha Ravi welcome as a colleague. They have written an introduction of her, and when asked what she wants to do in her new position Nayana Geetha Ravi answers: I plan to take a patient-centric...

This is the report from NAFKAM (Norway's National Research Center in Complementary and Alternative Medicine) on LP from March this year which was mentioned in Dagbladet's article NAFKAMs risikovurdering av LP består google translation: NAFKAM's risk assessment of LP consists - In accordance...

BBC has picked up the story: Kara Jane Spencer: Serverely ill singer seeks help finishing album A singer seriously ill with a severe form of ME has asked musicians and studio technicians to help finish her debut album.

Yes, she's been a strong advocate for a biopsychosocial approach to ME for many years. On the other hand she has also raised the need for more research on illnesses that affects mostly women.

That would have been both wonderful and useful - particularly from someone with your academic credentials. Speaking of that, I'm disappointed Dagbladet is doing the same as the Reuters article, omitting Dr. Tuller's academic credentials. That's just childish. @Jonathan Edwards I can send you a...

Two articles about ME in the Norwegian newspaper Dagbladet today. Both are paywalled. One is about a doctor who suffered from ME and recovered with mindfullness. She is active in the "patient" organisation Recovery Norge which promotes Lightning Process. The other article is about the planned...

The Guardian has a corona virus article today that includes an interview with Garner Since his piece was published, Garner has received emails and tearful phone calls from grateful readers who thought they were going mad. “I’m a public health person,” he says. “The virus is certainly causing...

Copied from the long Covid thread The Guardian has a corona virus article today that includes an interview with Garner Since his piece was published, Garner has received emails and tearful phone calls from grateful readers who thought they were going mad. “I’m a public health person,” he says...

OMF announced this week a new Celebrity Ambassador - Jennie Jacques. She is an actress and currently playing the role of Saxon Queen Judith in the historical drama TV series Vikings. Jennie explains in her own words, why her new role as an OMF Ambassador is of significance to the entire ME/CFS...

This seems to be their next step. They have a biobank and have collaborated with others before. From the forskningno article linked above (google translated): - Cyclophosphamide gives a broad attenuation of several immune cells, and after treatment there is a moderate decrease in various types...

I found this from April 15th 2020 https://solvecfs.org/wp-content/uploads/2020/04/COVID-ME-CFS-Recommendations.pdf It states: 1. Some COVID-19 patients are exhibiting ME/CFS symptoms (nearly 35% of patients) The references are: The New York Times - Some Coronavirus Patients Show Signs of...

They've also interviewed main author Ingrid G. Rekeland and Øystein Fluge. This is the first study to investigate this principle of treatment for patients with ME / CFS, and the study is thus exploratory, explains Rekeland. Larger studies must be conducted with a control group receiving other...