Search results

  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    In addition it seems the plan is that Live Landmark gets to individually choose participants who have not yet "identified" themselves with the diagnosis. They say that the statistician who will analyse the data is independent and objective, but it is not without interest that the participants...
  2. Kalliope

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    It seems the source is Solve ME/CFS Initiative? From the article @Sly Saint copied in the first post of this thread: According to the patient advocacy group Solve ME/CFS Initiative, nearly 35% of COVID-19 patients are experiencing ME/CFS symptoms post infection. Since the onset of ME/CFS...
  3. Kalliope

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    Here's what on their website about Covid-19 and ME/CFS: JOGO provides Telerehab to help patients receive critical rehab during COVID-19 in the following areas via Telehealth. Pain Management Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (35% of COVID-19 patients suffer from CFS...
  4. Kalliope

    JOGO Health Launches COVID-19 Chronic Fatigue Syndrome Study May 2020

    JOGO helps healthy brain cells rewire to work with muscles that have become inactive due to stroke and other neuro-muscular conditions. JOGO is a prescription digital therapeutic product composed of wearable wireless s/EMG sensors, and a patent protected Mobile App that provide treatment...
  5. Kalliope

    ME Awareness day / week / month and #MillionsMissing May 2020

    Vogue retweeted this article from 2018
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The study will be tremendously independent, fair and scientific. Bigly! It will be the greatest study you've ever seen! :rolleyes:
  7. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Article about the study in the newspaper Dagsavisen Fremtiden. Assistent general secretary in the Norwegian ME Association Trude Schei says: If it really was that simple, that a small seminar could change everything - that you can think yourself well, then ME wouldn't have existed. Previous...
  8. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    In a blog post from David Tuller today about May 12th (shared here) he briefly mentions the study: Life has stalled overall, but that hasn’t stopped the publication of problematic and often laughable research—such as a recent Norwegian study looking at cognitive behavior therapy combined with...
  9. Kalliope

    ME Awareness day / week / month and #MillionsMissing May 2020

    Trial by Error by David Tuller - Today is May 12th and Everyone's Missing Much is on hold–but people who have been sick for years or decades are still sick and still waiting for effective treatments. If investigations of the long-term sequelae of COVID-19 can help shed light on the mechanisms...
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    dr. Anthony Komaroff for Center For Solutions For ME/CFS Will There Be a Post-COVID-19 Form of ME/CFS? Will some people who get COVID-19 subsequently develop ME/CFS? After all, many people with ME/CFS say that their illness began with some kind of infection: “a virus,” “a flu,” “a bad cold.”...
  11. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Wyller has written a reply. Nina Steinkopf's review of the study online in Dagens Medisin contains both falsehoods, omissions and inaccuracies. Thus, she unfortunately helps to confirm the suspicion that there are "ME activists" who are running a smearing campaign against research results they...
  12. Kalliope

    ME Awareness day / week / month and #MillionsMissing May 2020

    The Norwegian ME Association donates 330 000 NOK to the Comeback Study (on fecal transplantation) and 200 000 NOK to the ME research team at Haukeland University Hospital (led by Øystein Fluge and Olav Mella) to further research into identifying ME patients who might profit from immune...
  13. Kalliope

    Information film about ME and PEM - Norwegian ME Association (in English)

    To mark the international ME Awareness Day, the Norwegian ME Association - Rogaland County - has uploaded the film with subtitles into Czech, Danish, Dutch, Finnish, French, German and Swedish
  14. Kalliope

    News from Scandinavia

    That's quite some news. They seem to aim for patients from abroad too as the whole website is in English as well as Swedish. I'd like to see more information about them, at least the names of their health care professional(s), but hope there is reason to your cautious optimism, @mango
  15. Kalliope

    News from Scandinavia

    After her latest opinion piece (discussed here), Nina E. Steinkopf received a video greeting from severe ME patient Solveig who gave permission to share it further. Solveig tells a tough story of severe deterioration after an infection and after having followed the advice to suppress symptoms...
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article in the Icelandic newspaper Morgunbladid where the patient organisation ME-félags ísland expresses concern of a possible increase of ME following the pandemic. They say the medical assessment for ME in Iceland isn't good, and that ME patients thus may end up with a wrong diagnose, again...
  17. Kalliope

    Norway: Book about ME and invisible illness- "But you don't look sick" by Ragnhild Holmås

    Review from the newspaper Dagbladet from a reviewer who is also a nurse. Slår knockout på skeptikerne google translation: A knockout for the sceptics "Diagnosed laziness and epidemic hysteria" . These are typical characteristics of myalgic encephalopathy, or ME, both among physicians and the...
  18. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Huffington Post UK: Coronavirus Is Leaving People With Serious Fatigue - What Can You Do About It? Interviews with professor Paul Garner from Liverpool School of Tropical Medicine and dr. Charles Shepherd from the ME Association on Covid-19, post viral fatigue and activity management. While we...
Back
Top Bottom