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I am so, so sorry to hear this :broken_heart: Sending you a virtual hug :hug:

That's such an important point. Pacing is a way to do as much as is possible.

Now shared on Facebook. The Scientist has over 2 million followers there.

This seems interesting.

I thought at first it was the PACE trial they meant :laugh: You make a good point and perhaps it's even the opposite that's true? Wasn't it the XMRV saga that got Ian Lipkin into ME research, for instance?

The "Take Action" link doesn't work. Is it just a temporary glitch, or is there another link which is better to use?

Another beautifully written and though provoking article from Naomi Whittingham. She describes among other how the medical gaslighting she experienced as a young, very severe ME sufferer has consequences for her today when deciding what the right precautions are for her as society is opening...

The Scientist - Could COVID-19 Trigger Chronic Disease in Some People? The disease—formerly known simply as chronic fatigue syndrome, or CFS—has long been stigmatized to the point of being ignored by many physicians and researchers, in large part due to its mysterious etiology. Doctors would...

Seems the journalist gets the message. Hopefully the article will be swiftly corrected concerning exercise as treatment approach.

The Conversation: Coronavirus: why are some people experiencing long-term fatigue? by Frances Williams, prof. of Genomic Epidemiology and Hon Consultant Rheumatologist, King's College London Chronic fatigue doesn’t lie within the remit of a single medical speciality, so it’s often overlooked on...

There was an article about Rasmussen last year on a news site about research, where he says chronic fatigue syndrome is included in his drawer. Don't know if that's stated also in the now published paper. We discussed it a bit in the Scandinavia thread here I'll insert the first post about that...

The Swedish news site on medicine "Dagens Medicin" writes today that long-term illness with covid symptoms now will be registered. Many people who are ill long term with covid-19 symptoms say that they have been denied care and met with disbelief. Now the National Board of Health and Welfare...

ETA:

This was excellent. Paul Garner talks about post covid for half an hour. He tells his story, describes a fluctuation of symptoms, brain fog. That doing too much results into "an echo of the original infection". He goes on to say: It's actually quite complicated to negotiate this viral...

Tweets from Miranda Hart today about ME:

BBC: Coronavirus doctor's diary: Why are people remaining ill for so long? But more likely, these long-haulers are experiencing a prolonged and exaggerated immune response to the original infection, on top of the damage caused to their lungs and other organs. Our challenge as doctors and...