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Yes, she did a nice job indeed. I tend to like to add a little channel over the nose where I put in a wire grocery tie, and this means I can always press it closer to the nose. I am also wearing a visor now over two masks. I wish there were videos around about how the covid aerosols travel in...

A linguistic digression: Here is the etymology of "hamfisted." (I do so enjoy British English. Here in the new world the language has become telegramatic, the vocabulary sparse, and the sentence structure really dull. Even authors are writing like this. Anyhow, thanks for reminding me of that...

Brilliant Milo, brilliant post. Thanks. I really wish the scientists could just zero in on what the heck is causing the exertion intolerance. Why is it taking so long?

I hate this disease with a vengeance also. Why can't they sort out what is causing the exertion intolerance: that is the key symptom. What is causing this exertion intolerance?? This is a cruel illness, which operates like an abuser; it destroys the lives of the young and talented.

Dear Annamaria, Thank you for these links. It is so hard to know which bit of information to follow. Thanks again.

Dear Lunarainbows, Lovely name that! Thank you for your response. Goodness, that sounds rather unpleasant, to say the least. I really don't know what to do. I will keep reading. What a horror this ME is. When will there be something concrete for all the patients!

Dear Peter, I genuinely appreciate your response. Do you know what the negative reaction might entail? As for physicians, well, here in Canada, the GPs do not have a clue about this illness and many think the person is just 'tired' and should 'move about' more. So, I have no one to ask here...

Merged thread Not quite sure where to ask this question: is an influenza vaccine safe for someone with ME? someone who has never had one? I am not ill, but had my first flu shot this past fall and will have another one. But a family member with ME is asking to be put on the list for a shot...

My impression from the website is that the researchers are interested initially in folks from the UK. Is this correct? ( Also, here in Canada a large majority of the population does have UK ancestry: England, Scotland, Wales, Ireland. Some people are of mixed UK ancestry and other European...

Thanks very much for posting. I am very happy to see that research is finally being seeded in Canada. It has taken decades for these first seeds to be planted. But the patients are still totally abandoned. There is absolutely no one to go to for help. We have looked in Montreal, and Toronto...

Thanks for posting. I wanted to read the letter, but was unable to see it. Any way of unlocking it??Merci.

Information about what Ativan affects must be out there. The mechanism of these Benzos must be well known by now. Or is it? I do know that many ME doctors in North America prescribed and still do, Klonopin. I am not scientifically familiar with the difference between these two Benzos. Many...

Absolutely riveting and heart shattering. Every GP needs to see this. Here in Canada there really aren't doctors of the calibre interviewed. I noted Dr Nacul is now in Vancouver, however. But in Montreal there is no one of this experience. Dr Moreau is a researcher not a physician. Canada is...

Doctors seem to be finding new problems the virus creates on a daily basis: good summary from Washington Post: https://www.washingtonpost.com/health/2020/05/10/coronavirus-attacks-body-symptoms/?arc404=true

Yes, Trish, imagine walking 3 miles!! I am well, and I cannot at this point walk 3 miles!!! So many sick folks can't even walk around their houses adequately, some stay in bedrooms in the upstairs parts of their houses--never able to come downstairs for years at a time. I wish we could hear a...

Thanks for posting this video. Does this suggest that people may be born with these sorts of vascular/cardiac issues? What I found most interesting about Mona's testimony was that she never used the words PEM, or malaise. Also, when our family member was on the mestinon, aside from the side...

yes, it does sound very interesting. Sadly, I do not think Mestinon is going to solve the problem.

Thanks Grigor for pointing out it helped with brainpower. Thanks, glad to hear your experience. You, know, I can't figure out why ME folks are so intolerant to all meds. The same experience in our family. The two doctors may be 'into this drug' but if doesn't help because it is not...

Dear Badpack I agree entirely. Our family member tried it in 2008, and for a long time, gave it a good shot. It was awful, in terms of side effects, and in terms of not helping whatsoever. Many CFS doctors during the 2000s tried it on their patients. When I heard that Dr Systrom was...