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Alvin, What you observe is correct. The T3 was having a stimulant effect. Many of the meds the CFS doctors gave had a stimulant effect. Then when a bit more movement was attempted and seemed to be sustained, oh Lordy Lord, the crash that came! There were even seizures on some occasions. And it...

I know very well that Dr Davis and Hanson are not on holiday. Dr Davis is a workhorse, who deprives himself of rest and luxury and any indulgence to get a the source of this nightmare. Dr Phair is also eager to help, as is Dr Hanson. The conference is a chance to state what was found, and to...

From some of my reading, there are MS doctors who are cautioning MS folks with regard to Copaxone, as it has nasty side effects. And the ME population is often a very sensitive one. Also, I might just add that at least 2 CFS doctors prescribed T3 (compounded) for my daughter. The result was slow...

Yes, Dr Edwards, 'everything is action.' Of course, with the exception of severe ME; the slightest attempt at action or movement engenders horrific malaise and the poor person must lie still to quell it, lie still like rocks for hours, to bring down this intolerable malaise. The disease is...

Thank you for your detailed response. From what you write there is infection and inflammation. The latter(neuroinflammation) is virtually impossible to control with the meds we now have. How would all this connect with adenosine signaling problems. As for "novel" viruses. This is really an...

This is very interesting. Would an adenosine singling disorder create PEM--this nightmare symptoms after any slight exertion? And would this kind of disorder put ME into the category of Alzeheimer, MS, Bipolar,Schizopherenia? And it seems coffee affects adenosine receptors, but it doesn't seem...

I don’t know how many here have tried Mestinon, but it was tried here. It did not prevent crashes, or PEM. It was used for about 2 years. Thus far nothing has ever addressed this horrid symptom of malaise,for lack of a better word. Any exertion just makes it skyrocket. It’s always there low...

If ME is due a stochastic process, it will be many decades before anyone has any clue what is going on.

Dear Dr Edwards Would you be willing to speculate where you think the problem might be in ME? If not viruses, if not the immune system, if not the GI tract, in your medical opinion, what do you think is going on in ME? I'm not trying to put you on the spot; I'm just wondering if your have any...

Thanks for the date Snowdrop; how discouraging to have an outdated interview. And there is Dr Kerr saying a cure will be forthcoming in 3 to 5 years. And it is now 2019. Anyhow, one has to be so careful with this small videos and the dates.

Dear Dr Edwards, In the interview in the other thread, Dr Kerr just added that the Interferon Beta might address viruses if there were any in ME. His focus seemed on the immune system. He is looking for money to do a trial he said, with the interferon Beta, and he hopes to start this year.

Dear Milo, No, not do it yourself at all; Dr Kerr want to start a trial this year. He is looking for funding.

In the thread about Sophia Mirza's Mum (her passing) there is at the top a short video about Sophia, and towards the end there is an interview with Dr Jonathan Kerr. He is according to the journalist at ST George's university-London. He said that they found many problems in the immune system...

Moved post I would like more information about Dr Jonathan Kerr's proposals. Perhaps Hip or others would be able to outline the differences between the interferon which Dr Kerr is proposing with that used by Dr Chia. And is this treatment likely to be viable?

Excellent description. Folks, I cannot stand the word ‘fatigue,’ as frankly it is very different from normal fatigue. It is sick feeling, toxic feeling, nausea, weakness and on and on. That is not fatigue.

This was prescribed by several Cfs doctors in USA some years ago.Initially, 5 mg, then as the illness was so severe with huge relapses and seizures, the dose was bumped up to until a dose of 20mg. It brought nothing but osteoporosis in a young person. Now the weaning down has been going on, very...

Thanks Tired Sam; I sure needed a chuckle today.

And then there was also the doctor in Belgium. For a time there, almost all the patients I had contact with apparently had Lyme, bAsed on testing done at the well known lab in Germany. Being plagued by this illness, ME, shoves one onto a road of nightmares one never imagined existed.

Dear Rvallee Our family member had good normal sleep. Obviously, before an exam there might be anxiety, but sleep was good. Once the ME hit overnight, the sleep also tanked, and tanked so badly meds were required and still it is not good.

Thanks for the post. Not sure here, but I recall reading that there is at present no medication which addressed enteroviruses. I also heard that 'they' are working on one, but I have not seen any further news.