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So disappointing. For all those women, of course, it’s a tragedy. And for all ME/CFS patients across the world, it’s a huge loss. I can’t wait until those stories of sexual harassment become a rare event. It seems everywhere you look, there is sexual misconduct. So sad, really.

If you have no heart problems and have ruled out everything else, I believe you were having panic attacks after the first episode of crash. The panic attacks should stop. Be careful and don’t overdo it. Strength training is very, very hard on us. The last leg day I did before I knew better...

It does seem odd, but on the other hand it probably is a defense mechanism. The same that makes people do incredible stuff when their life depends on it. I guess my cognitive impairment isn’t bad enough because depression hits me!

@Peter Trewhitt that’s a very interesting theory ! And it might explain the kind of high I am on at the moment. Endorphins and adrenalin together, a dangerous mix for us. This morning I’m feeling exhausted, so maybe it’s starting to wear out.

Ha Ha Ha ! You made me laugh, it sound so much like me !

I’ve never had IVIG. I think it’s the adrenalin pumping. Or else I’m really better.

i wasn’t sure where to put this. Please move it if necessary. I’m sure this happens to others as well. After being pretty much crashed and useless for 2-3 weeks, I am having a good week. I started this project to give me something to do while being stuck at home and it made my adrenalin high...

Yes, I do and I’ve been thinking this for a while. This would fit the « CFS/umbrella » diagnosis, where CFS is a fit because nothing else can be found. If you keep digging, you might find the cause, treat it and cure it, as happened to Jen. But it’s not typical ME (my thinking is in line...

Many years ago I was taking up to 90 mg per day. For the last 2 years I was taking 15 mg. I just stopped 2 days ago because I am having severe bouts of abdominal pain. 3 times in the past year, not related to anything I can think of. Since 1% of people using it can have abdominal pain as a...

For me it’s never a straight line. Okay days, bad days, I never know. Funny I’ve been having gastric problems too. Severe enough to have me worried.

@cargova wow, they do look exactly like mine ! Is this a picture of the palm of your hand ? Did you have them for a long time and do they disappear/reappear ?

@Binkie4 Maybe you’re just passed your optimal dose and need to decrease and stay there. How are you today ?

I haven’t had any, quite the contrary, my stools are now firm and they hadn’t been for two years. But in all honesty, it could also be due to a garlic/alcohol mixture I take every day. Or drinking kefir. I’m now at 3,5 mg, but I have been overdoing it the past weeks and crashed. I also had...

I did the ultrasound and the radiologist said he saw nothing that could explain the pain. He sas the microkyst too but I was wrong, it has nothing to do with my pain. I got another appointment with my doctor to see what he wants to do next. The radiologist said he could order some more tests...

Thank you ! No, he did not tell me, nor did the pharmacist !

Thank you everyone for your kind words and sharing your experience. I went to the doctor’s this morning and he thought it might be gallbladder stones and he’s having me do an ultrasound of the abdomen and pelvis. As soon as he said it, I remembered that last year, when I went to the emergency...

Thank you. I’ve had a gastric biopsie and H. Pilori was negative.

Does it happen without an apparent reason like me ? No logic as to what food you ate ? And how often did it happen to you ?

This is getting scary. It happened three times in the past 12 months or so. It doesn’t seem to be related to a specific ingredient, because the same thing that I eat one day without problems (maybe not the same brand, but the same food) will make me very sick without warning another day. The...

I like the second one very much !