Search results

I think you already have it. My heart is missing a beat just reading what you went through without feeling pain...

Thank you for doing such amazing work and not giving up !

This partially answers the question of recovery : https://www.omf.ngo/2016/08/01/prognosis-of-mecfs/

That’s too bad, the idea of augmenting blood flow was appealing. In my case I have no doubt it’s a big part of the problem. And since many of us have both ME and fibro, even though it wasn’t successfully tested with PWME, it could have had potential benefits. Oh well, just another...

I hope this hasn’t been posted already. I saw this today and thought it looked promising. Not a cure, but maybe a 30% relief possible of certain symptoms, such as dizziness and fibro pain. At 400$-500$, I would be ready to try it. What do you think of it ? Has anyone tried it, or something...

I just want to say I want to be in the Canadian « I love shovelling » gang also ! Shovelling was one of my favorite « sports »! I Loved the warm body feeling despite the cold, and enjoyed finishing with my parka unzipped and sweating. This Superman is definitely an amateur and he will end...

Well, another disappointing test. I had a sleep study done a few months ago and had the results this week. The doctor I saw specializes in sleep apnea, and she said I am far from having any and everything is perfect. She says I have a lot of insomnia but there is nothing she can do for me. I...

@Wonko I’m happy for you and I hope it stays that way. Keep crying if it makes you feel better. My depression is coming back and I feel a little better. Weird. Winters are so hard.

Follow-up : I’ve applied ice one and massaged my arm (not tender massage, but deep tissus/muscle massage) as much as I could tolerate the pain (from the other arm doing the massage). I’ve also seen my massotherapis and she has given me 2 short and easy exercises to do. I started tonight. So...

I have very little hope that my doctor will know what to do. I will be going but apart from a few specific people, it seems like I come from a different planet and nobody knows what to do with me. It might have to do with the fact that my pain threshold is very high and I never really look...

Thanks, I’ve scheduled an appointment with my GP in 2 weeks and will suggest it to her. I am actually ambidextrous (sp?). My dominant hand is my right hand but I use whichever one is more convenient. In this case I use the left hand a lot more. Touchscreen. I couldn’t use a keyboard whith my...

@NelliePledge does your GP think it might be angina ? And did you find relief for your arm ?

I’ve been tested so many times for heart problems, and again not long ago at the Ottawa heart institute that this possibility is very slim. This has been going on for months and months, it would have been seen before during testing I suppose.

The elbow and down.

I’m hoping someone’s had this problem and knows what to do. I am seeing my massage therapist in 2 days but last 3-4 times I saw her I had to leave after a few minutes because I couldn’t stand being touched, so I’m not too hopeful with that. My left arm has been hurting for many months, mostly...

I am probably not always clear, and I often forget so much. I’m sorry if this is confusing. At first I was talking about off the shelf drugs in general, then I was specifically talking about LDN. And the original post was talking about a skype appointment with Dr Teitelbaum. Why would you...

Honestly I don’t know. I have ordered overseas a few times but never really paid attention to anything pertaining to customs.

Yes, and I thought you were talking about LDN when you said don’t waste your money.

You’ve tried LDN yourself ? I guess it did nothing for you ?

Like @MeSci said, they wouldn’t know what it is. Unless they open it for some random search which I doubt would happen.