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I don’t think i can do that

I believe my C1 is fused to the skull, from birth. I remember this from chiropractor xrays, a long while ago. Go figure, i save myself a surgery :rolleyes: I would not know if this causes me any restrictions, as i do not know otherwise. Maybe head extension is restricted...

Hi @leokitten I tend to agree with you to a degree, and you made sure to mention ‘under normal conditions’. However there are certain drugs that require careful monitoring such as lithium, tobramycin, gentamycin and others. Drugs that depend on a normal kidney and liver function will become...

It is a CBT/GET program, and there is a chance that a few patients who also happen to have ME will be harmed by this kind of program. I am not sure whether this team is even aware of this. Personally the cardiologist i saw for POTS recommended i enter their in-house exercise program. It was...

Abstract: Background Postural orthostatic tachycardia syndrome (POTS) is an autonomic nervous system disorder causing an abnormal cardiovascular response to upright posture. It affects around 0.2% of the population, most commonly women aged 13 to 50 years. POTS can be debilitating...

One more comment: when health care systems adopt the bio-psycho-social model of care, it is very difficult to exit that model, which means it condemns patients to not get any other ‘care’ than education About their disease and CBT to learn to cope.

I am surprised there is no history of childhood abuse’ in their risk factors. Maybe that will come later (sarcastic tone)

Very honestly, if you do not have evidence that anything is working in terms of treatments, stop telling patients they need to try alternative therapies and supplements, because there is no evidence for that either. And if you are advocating for physician led group therapy and CBT, you better...

MSNBC had 2 COVID-19 clips segments of interest tonight. one pertained to the UK clinical trial opabout inoculating 90 young adults (18-30) with COVID and trialling vaccines and treatments on them. The trial is set to start in January but seemingly there are ethical concerns now, since there are...

The key word in this abstract is supine. They tested patients at rest, and horizontally. Would there be any change in cardiac function when tilted vertically? In which way cardiac function would be different when vertical, considering that orthostatic intolerance is present in just about 100% of...

Biomarkers. We need biomarkers. And while disability support is much needed as it is difficult to prove you are disabled, we need to be careful in my view to not encourage a for-profit test that is not well accepted in the medical community. Ideally a Widely available test that does not rely on...

Great to hear @Rosie, best wishes for prompt recovery and good news

Here is an article from the university of British Columbia (UBC) about a clinical trial for COVID Drawing closer to COVID-19 treatment breakthrough Link to article

I was just commenting on a post on FB about a new patient with ME that is also experiencing shortness of breath (she did not mention whether she had COVID or another onset). My onset was EBV. I started having shortness of breath perhaps 10 months after onset. It was not an out of shape thing...

CNN was playing this evening the news that the UK is recruiting young volunteers to be inoculated with COVID-19 after receiving either a vaccine or a placebo. I have no word. These young people do not know what they risk. Here is the story...

Claims of recovery and selling supplements to desperate patients gets you a ticket to a by invitation-only conference. :confused:

i do not disagree with you, and i would say we are still in the early days, where very little is known but no more than 7 months has elapsed since getting infected. Those who still have lingering symptoms may still be on their way to recovery. Then, persistent and long-term symptoms may not have...

Who is Forward ME ? Are there doctors in that group? I am very pleased about this statement. A breath of fresh air.

https://www.nih.gov/news-events/news-releases/nih-intramural-researcher-dr-harvey-alter-wins-2020-nobel-prize-physiology-or-medicine

Dr Alter if i remember well, was the chairman of a ‘State of the knowledge’ conference that gathered all the ME experts around 2011 or 2012. He is a compassionate man and was extremely professional and highly respected.