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"As in previous years, October is crowdfunding month at the University of California, Berkeley, and I am once again seeking funds to continue my work on ME, ME/CFS, “medically unexplained symptoms,” and now long Covid. These tax-deductible donations to Berkeley will support my academic position...

For reference, here is our discussion thread on the process that lead to this publication, UK: Priority Setting Partnership for ME/CFS

Post on Reddit. "TLDR: BC007 is being delayed a bit, likely until November or at worst early 2023. BC have done some good proof of concept studies for BC007, but not enough to get investors now. They are worried Erlangen will fuck the study up by including ME/CFS patients so they demanded they...

In my opinion, in reference to PEM, we also need even more basic stuff than described above, which would be to ask large numbers of pwME to simply describe what PEM is to them. You only need to look at the discussions around PEM here on the forum to see that while there is broad agreement, there...

Part two of ME Research UK's coverage, https://www.meresearch.org.uk/genetics-research-symposium-part-2/

Latest quick blog, "DecodeME Questionnaire – Shining a light on the ME/CFS community", https://www.decodeme.org.uk/decodeme-questionnaire-shining-a-light-on-the-me-cfs-community/

First batch is going out early next week. The strikes by the postal workers today and tomorrow may mean a short delay for delivery though. We've been advised that the size of the packing used should fit in standard sized letterboxes.

Purpose: The aim of this study was to investigate the reported persistent or new symptoms 1 year after a single dose of 200,000 IU of vitamin D3 and hospitalization in patients with moderate to severe COVID-19. Methods: This is a post-hoc, exploratory analysis from a multicenter, double-blind...

Abstract Background Functional Neurological Disorders (FND) are common in clinical practice. It is recognized that FND may present at onset or during the course of other neurological diseases (functional comorbidity). Cases We report a clinical series of three patients who initially presented...

Independent from initial severity, many patients develop persistent symptoms after infection with SARS-CoV-2, described as long COVID syndrome. Most of these patients are treated by general practitioners (GPs). As evidence-based treatment recommendations are still sparse, GPs must make their...

As part of a collaboration between Dr Paul K Potter (Oxford Brookes University) and Dr Karl Morten (Oxford University) there is an opportunity to establish and run a screening programme for anti-inflammatory peptides with the potential to treat chronic disease. With age there is a gradual...

Just because it appeared on my timeline, here is the Facebook ad promoting the study.

A link to the above document was sent out to the Trans-NIH ME/CFS Working Group email list. "A list of post-infection illness experts involved in the NIH’s RECOVER Initiative is now available on the RECOVER website: https://recovercovid.org/docs/508C-PostInfectionIllnessExpertList.pdf This...

The American reporter Ed Yong, who has recently written a number of well received articles on ME and Long Covid, has written a Twitter thread "about the ethos behind these pieces, and how I’ve approached interviewing, writing, and the rest of it.". I thought the thread itself was full of great...

Full title: Coexistence of fibromyalgia and post-polio syndrome in persons with prior poliomyelitis in Turkey: the relations with symptoms, polio-related impairments, and quality of life Abstract Purpose To investigate the prevalence of fibromyalgia(FM) and to show its relations with symptoms...

Full title: Non-specific symptoms and post-treatment Lyme disease syndrome in patients with Lyme borreliosis: a prospective cohort study in Belgium (2016–2020) Abstract Background Patients with Lyme borreliosis (LB) may report persisting non-specific symptoms such as fatigue, widespread...

Introduction: Functional neurological disorders (FND) are conditions that cause to alterations in nervous system functions. They are disabling and impair the quality of life of patients but that are potentially reversible provided they have specific management. Functional seizures (FS) and...

Abstract Background The autonomic nervous system (ANS) is a complex network where sympathetic and parasympathetic domains interact inside and outside of the network. Correlation-based network analysis (NA) is a novel approach enabling the quantification of these interactions. The aim of this...

Abstract Objectives To describe the early data from the Your COVID Recovery® digital programme and to explore the data collected from two embedded outcome measures. Design Observational. Setting Primary and secondary care (England—Online). Participants 110 individuals completed the programme...

Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe, debilitating chronic disease characterized by marked tiredness and fatigue, cognitive dysfunction, sleep disturbances, pain, and autonomic, immunological, and metabolic dysfunctions, in which all...