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We have several threads on this treatment, including a discussion thread: Stellate Ganglion Block treatment To find threads on other research click on the stellate ganglion block tag at the top left of this thread.

I'm very sorry to hear you and your mother had such a hard time with Covid. A beautiful poem, as ever. Thank you. This part, inevitably, struck home with me too:

See also this thread: Works of fiction where characters have ME/CFS

Interesting question. I think FUNCAP asks for an average day over the last month, so it enables a sort of overview of our current state of health/function as we recall it over the last month. For some, that will have been a roller coaster of awful, bad and less bad days, for others it will have...

Sounds like good news. Well done those who made this happen. I hope this suggestion that PEM only affects 'some people' with ME/CFS will be corrected.

Fair point, @RaviHVJ, I was referring to treatments that are not prescribed on the NHS that have no basis. I also know someone in another country with Long Covid who has been helped by doctors concentrating on POTS treatments particularly.

Maybe he had a visiting professorship for this specific project while still based in Sheffield.

How can something be 'a little better but no noticeable change'? If the change isn't noticeable, how do they know it's a little better? That scale that only allows one negative/no change and lots of variations of positive should be illegal. It's not a research instrument, it's the cheats version...

Maybe write to the authors and ask how the figure was calculate. They shouldn't be reporting a figure without the clear source.

Chris Burton Department for Functional Disorders and Psychosomatic Medicine, Aarhus University Hospital, Denmark

This is so unrealistic. Who wrote this stuff. What if you can't afford to move somewhere nicer.

Well done with getting it all the way to publication. I think it's a very valuable resource.

I thought cancer fatigue didn't involve PEM or other ME/CFS symptoms, that it really is the symptom fatigue on its own.

Why would spending a lot of time horizontal affect what happens in terms of blood pooling when standing up, apart from the initial adjustment needed if you get up too quickly?

Not any that have made their presence public, I think. Edit: I mean I'm not aware of any, public or privately.

Charity number: 1193035, registered in the UK. https://bacme.info/

That's good. So which charity are they talking about?

Fantastic, thank you so much, @PhysiosforME

That was my worry too. There does seem to be something going badly wrong with the MEA.

Are you aware of or in touch with people researching the Visible app that uses HR and HRV monitoring as well as symptoms and FUNCAP? I'm not up to date with what they are doing, but I understand Visible provides a morning score for the coming day based on data.