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by Jonathan Shedler Ph.D. Some very interesting remarks about psychotherapy RCTs (many relevant to CFS trials). But I worry some people would agree with this, say evaluation is impossible (main argument of psychoanalysts in France for eg.) and take the opportunity to sell even worst...

by Amy Proal http://microbeminded.com/2017/12/07/interview-with-neuroscientist-michael-vanelzakker-vagus-nerve-mecfs-latent-infection-and-more/

by James C Coyne December 07, 2017 https://www.coyneoftherealm.com/blogs/news/coyne-of-the-realm-s-open-letter-to-the-national-health-and-research-medical-centre-nhmrc-of-australia

@Grigor

The MUPP(ET)S programm

http://www.virology.ws/2017/12/04/trial-by-error-my-one-sided-correspondence-with-professor-crawley/

https://www.nytimes.com/2017/11/28/magazine/a-failure-to-heal.html?smid=pl-share

There was a French article a few days ago not about doctors who have chronic illness, but who used an app to simulate daily life with a chronic illness. Even that far from reality experience was an eye openner for them...

This man faced death threats and abuse. His crime? He suggested that ME was a mental illness https://www.thetimes.co.uk/article/this-man-faced-death-threats-and-abuse-his-crime-he-suggested-that-me-was-a-mental-illness-t250dr25xg5 See this thread for more ugly criticism of "activists"...

Yurk. The bully rewarded. Seriously? Hum, this element is missing to make Saint Esther a perfect marthyr figure. Btw this twitter account has allways been a bad idea, not funny and too easy a target...

Exercise studies Cardiopulmonary Exercise Testing as a Diagnostic Tool and a Quantitative Measure of Post-exertional Malaise in Myalgic Encephalopathy/Chronic Fatigue Syndrome Lead researcher: Per Ole Iversen University of Oslo Study Start Date: June 2014 Estimated Study Completion Date...

The authors did a very similar paper with interviews published a month ago: http://sci-hub.bz/http:/www.tandfonline.com/doi/abs/10.1080/09638288.2017.1383518...

About ME: Shining a light on a debilitating disease many believe doesn't exist https://www.irishtimes.com/life-and-style/health-family/about-me-shining-a-light-on-a-debilitating-disease-many-believe-doesn-t-exist-1.3299856#.Wh1mtEH5sVk.twitter

ME Association Statement: Negative phase III clinical trial result from Norway for Rituximab in ME/CFS http://www.meassociation.org.uk/2017/11/me-association-statement-negative-phase-iii-clinical-trial-result-from-norway-for-rituximab-in-mecfs-27-november-2017/

Added :)

Added (in red to avoid confusion with the title, I tried to choose a not too agressive red)

I just created a new thread listing ongoing studies. It's the first draft and I'd like to get your feedbacks to have the most uptodate list. So do not hesitate to signal any ongoing study not yet listed. Signal any error (spelling, broken link...) There are several studies that could be listed...

Multidimensional studies Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the National Institutes of Health Lead researcher: Avindra Nath National Institute of Neurological Disorders and Stroke (NINDS) Study Start Date: January 21, 2016 Estimated Study Completion Date: September 15, 2020...

An old article, but I just came across it. This article talks of some of the problems we encounter because people do not understand what we're dealing with. The author refers to this as "the healthy privilege" (as described by psychologist Dr. Becker-Schutte)...