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I made a brief comment using the journal facility - it was very easy, you just need to register. I didn't bother with references, as I think the reality of the bias is self-evident. But, if someone wanted to have a look at the evidence for self-selected samples producing biased results in...

A volunteer sample - so, the prevalence figures are completely worthless. Apart from justifying the favoured ideas of these researchers of course. I do not understand how authors can write such potentially biased reports, or how journals can allow them to be published.

"Our lab" All the authors seem to be from Icahn School of Medicine at Mount Sinai, New York, and the abstract is labelled with "Friedman Brain Institute Research Scholars Partnership" If I'm understanding that right, they seem to have a hamster model of something like fibromyalgia, with this...

On the other hand, it may have a lot to do with ME/CFS. I'm inclined to viewing at least some of the slow recoveries from Covid as being on a continuum where ME/CFS sits at the 'extremely slow to non-existent recovery' end. This is because of the experience of my family, where three of us had...

It's super news, very heartening. I'm posting mostly to keep the thread up in the new posts list, as I hope everyone gets to read the statement.

Yes, it's an interesting question, as to why the different treatment. Yes, there's a visible shaking, but plenty of people with tremors, twitches and funny walks are labelled with Functional Motor Disorder. I think it may have a lot to do with these two characteristics of Parkinsons: People...

I have been wondering if ciguatera might be a clue - this is a very potent toxin in fish. The disease it causes in humans if ingested sometimes leads to long term symptoms that I think are essentially ME/CFS. Both ciguatera and sarin seem to have long term anti-cholinesterase activity. If I'm...

I don't think this report has been posted yet, sorry if it has. https://www.govinfo.gov/content/pkg/CRPT-105hrpt388/html/CRPT-105hrpt388.htm The second report by the committee on Government reform and oversight Gulf War veterans' illnesses: VA, DOD continue to resist strong evidence linking...

Yes, this PSP didn't do that. It doesn't mean it has to be so always. Thanks for trying to make it different. I think there is a good argument for PSPs for many health conditions to include a section on 'how' the research is done, and not just be concerned with the 'what'. I suspect most...

One of the studies referenced by this paper is https://pmj.bmj.com/content/75/889/678 Ciguatera fish poisoning, 1999 That ciguatera toxin acts as a cholinesterase inhibitor has been disputed - saying that while it acts so in vitro, it does not act so in vivo. However, a document on suggested...

Good questions This 2011 paper is interesting: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3159173/ Health Effects Associated With Geographical Area of Residence During the 1991 Gulf War: A Comparative Health Study of Iraqi Soldiers and Civilians Briefly, they asked men who had been Iraqi...

Jumping in, for example. Is the HPA axis causing a withdrawal response? Can it be corrected by training people not to expect worsening symptoms after exercise, and giving them graduated exposure to activity therapy? Use of [some sort of stimulant drug] in order to help people with ME/CFS...

I thought that was a good article from Patrick Hadfield, President of ME/CFS Support (Auckland), an organisation that is surely among the more sensible of the ME/CFS charities in NZ. I liked the idea of some sort of tracking of Long Covid diagnoses, and the point about equal treatment in terms...

One thing I take away from that twitter thread is that filtering blood to remove microclots didn't fix Dr Asad Khan's Long Covid.

Sounds hopeful. Good luck. I think I'd like to know how she came to be interested in ME/CFS and how she has learned about it. I mean, it would be good to know if she has any personal connection through family or friends, or perhaps she has patients with it that she has known for a long time -...

That could be one reason. But, it suggests that a lot of the participants only answered in a very patchy sort of way. There's no mention of large scale patchiness in the answering of the individual abuse questions. They do say So, only 0.8% of those who answered the week 30 questionnaire...

The line on my reports says 'Platelet count'. :)

I don't want to pour cold water on this news, but it looks as though Dr Haley has been announcing that the cause of Gulf War Syndrome is known for a while now, and others have been ignoring the finding with equal determination. e.g. USA today story 2012

https://www.science.org/content/article/gulf-war-illness-linked-neurotoxins And here's a 2004 article I haven't been able to find a scientific paper to support the 2022 claims of certainty.

https://www.mayoclinicproceedings.org/article/S0025-6196(11)64983-5/fulltext Here's Dr Robert Haley (involved in the latest publication) writing back in the year 2000: