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Farewell To Kara Jane – Shirebrook’s Standout Musical Genius! February 2, 2023 https://meassociation.org.uk/2023/02/farewell-to-kara-jane-shirebrooks-standout-musical-genius/ Report on funeral service

Free professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-41/ Tuesday, February 14 1PM MST/8 PM in Great Britain & Ireland Find the time in your time zone here...

For what it’s worth, every one new person who is reached may be “worth” more than one person as some may go on to reach out to other people. And some of those may reach out to other people again, etc.

Firstly, for the avoidance of any doubt, this wasn’t a criticism of the DecodeME: I was highlighting the numbers in case people never read it to show the target hadn’t been reached or even nearly reached. This is probably pretty obvious but I reckon for a lot of people, they won’t apply and do...

I’m not part of the study but my impressions are: (I) Yes (II) The quicker they reach the target, the quicker results will be available. I’m sure Andy or someone who is part of the team can answer with more authority if they feel inclined. Happy to delete or edit if I’ve picked things up...

Copied post: Colin Farrell

I’m a little disappointed in the numbers. Looks like all in the ME community need to continue, or start, to highlight this in whatever way they can.

Source: CDC / Twitter Date: January 25, 2023 URL: HCPs: While myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is complex, case definition criteria make diagnosis possible. Learn how to recognize and improve patients' symptoms with these trainings...

Long Covid After One Year: The Good News & the Bad News https://solvecfs.org/long-covid-after-one-year-the-good-news-the-bad-news/ This blog post was authored by Solve M.E. President and CEO, Oved Amitay.

Looks good: https://www.mdpi.com/2227-9032/10/12/2438 What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults by Caroline Kingdon 1,*,Adam Lowe 2, Charles Shepherd 3 and Luis Nacul 1,4...

They have been recruiting for this study. Stanford University researchers are recruiting ME/CFS, Chronic Lyme, and Long COVID patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”. https://snyderlabs.stanford.edu/crashcourse/

They have been recruiting for this study. Stanford University researchers are recruiting ME/CFS, Chronic Lyme, and Long COVID patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”. https://snyderlabs.stanford.edu/crashcourse/

ME Association · WIZARD NEWS! SALLY WINS BOOK BLOGGERS AWARD FOR THE FIRST OF HER 'TOBY' BOOKS A children’s wild wizard book featuring a 12-year-old boy, who is a young carer looking after his mother who has M.E, has won the international Book Bloggers Novel of the Year Award for 2022. It’s...

"It's got to be in your head": Using Mental Illness to Silence Chronic Conditions in Afflicted by B Fitzsimmons in "Streaming Mental Health and Illness: Essays on Representation in Netflix Original Programs" See extracts...

That’s one of the reasons why I preferred “systemic exertion intolerance disease” to “chronic fatigue syndrome” and I thought ME/SEID would have been an improvement on ME/CFS.

From page 1:

Not sure about the last point: everyone has PCR-confirmed Covid in the study. So we are looking at the subgroup of the population who got Covid. The former point could be relevant: the finding could be due to confounding from some other factor e.g. if gender really alone was the biggest risk...

Now at 546 subscribers so up just over 100 since this message went out. It is going to be a push to reach 1000 by February 1.

Somebody sent me this. I haven't read the full article. "For long covid fatigue, a strategy called "pacing" helps, but at a cost" - The Washington Post https://www.washingtonpost.com/wellness/2023/01/16/long-covid-fatigue-pacing/