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  1. Dolphin

    On the clinical assessment of persistent fatigue and pain (includes people with ME/CFS), 2022, Bernhoff (Thesis)

    List of scientific papers This thesis is based on studies reported in the following papers, referred to in the text by their respective roman numerals. I. Assessment of systemic joint laxity in the clinical context: relevance and replicability of the Beighton score in chronic fatigue...
  2. Dolphin

    On the clinical assessment of persistent fatigue and pain (includes people with ME/CFS), 2022, Bernhoff (Thesis)

    https://openarchive.ki.se/xmlui/handle/10616/48455 Source: Karolinska Institute Date: January 4 and February 3, 2023 URL: https://openarchive.ki.se/xmlui/handle/10616/48455 https://openarchive.ki.se/xmlui/bitstream/handle/10616/48455/Thesis_Gabriella_Bernhoff.pdf On the clinical assessment...
  3. Dolphin

    United Kingdom: Science Media Centre (including Fiona Fox)

    Aylward worked in the UNUM centre. UNUM is/was a disability insurer: they pay money if you can’t work rather than a health/healthcare insurer who pay medical bills. My guess is Waddell is similar. I think it’s important to make the distinction: I remember someone on our side dismissed the idea...
  4. Dolphin

    USA: News from the Bateman Horne Center

    Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-39/ Topic: Reframing Resolutions Tuesday, January 10: 13:00 MST/20:00 Great Britain & Ireland Find the time in your time zone here...
  5. Dolphin

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    FWIW: https://bacme.info/event/bacme-agm/ The BACME Board would like to invite all BACME members to join us for our Annual General Meeting being held virtually via Zoom on Monday 23rd January at 6pm. The meeting will include a review of all the BACME activities in the last year, our financial...
  6. Dolphin

    Doctors’ attitudes toward specific medical conditions, Scoles, 2022 (includes ME/CFS)

    Merged Recording of webinar with Brooke Scoles on her study on use of stigmatizing language used about ME patients on an online forum. & https://fb.watch/hR88P5kpsj/ Organised by Norges Myalgisk Encefalopati Forening "Stigmatizing language about ME wtih Brooke Scoles, MPhil The language...
  7. Dolphin

    The Rise and Fall of the Psychosomatic Approach to MUS, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, 2022, David Marks

    I have an idea how hard it is and am grateful for your work on this. It frustrated me that Margaret Williams never seemed to submit anything for publication, not papers, letters or even (I believe) e-letters. I was grateful for her work, alone or with people like Malcolm Hooper, but I believe...
  8. Dolphin

    Long Covid in the media and social media 2023

    UK GP publication: 2022 in review: Will long Covid help us understand the unexplainable? https://www.pulsetoday.co.uk/special/end-of-year-reviews/2022-in-review-will-long-covid-help-us-understand-the-unexplainable/ :mad:
  9. Dolphin

    Pediatric Post-Acute Sequelae of SARS-CoV-2 infection [with ME/CFS control group], 2022, Jason

    https://www.tandfonline.com/doi/abs/10.1080/21641846.2022.2162764 Research Article Pediatric Post-Acute Sequelae of SARS-CoV-2 infection Leonard A. Jason, Madeline Johnson & Chelsea Torres Received 19 May 2022, Accepted 26 Jun 2022, Published online: 01 Jan 2023 ABSTRACT Aim Youth who have...
  10. Dolphin

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    I’m definitely not saying sexism and misogyny don’t exist. I’m saying the methodology is far from ideal in terms of rigorously ascertaining which elements of the experiences relate to gender/(institutionalised) sexism/misogyny and which are experiences both men and women with the conditions...
  11. Dolphin

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    I think that approach would be better approach to ascertain what experiences relate to gender and which relate more to general experiences both men and women with the condition face.
  12. Dolphin

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    There is more to a paper than the abstract. Skimming down the paper last night, I noticed gender was brought up e.g. “Several women attributed their adverse experiences and difficulties in obtaining a diagnosis and adequate treatment to systemic and institutionalized sexism and misogyny.”
  13. Dolphin

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    Without male controls, it's questionable one can assume that these experiences are specific to women.
  14. Dolphin

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    Women's Health Reports Vol. 3, No. 1 Original Article Free: https://www.liebertpub.com/doi/10.1089/whr.2022.0052 “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia Lea Merone , Komla Tsey , Darren Russell , and Cate Nagle...
  15. Dolphin

    Accommodating Employees with Impairments and Health Problems: The Role of Flexible Employment Schemes in Europe, 2022, Giovanis & Ozdamar

    CFS is discussed Free full text: https://www.mdpi.com/2673-8104/3/1/4 Accommodating Employees with Impairments and Health Problems: The Role of Flexible Employment Schemes in Europe by Eleftherios Giovanis 1,*and Oznur Ozdamar 2 1 Department of International Trade and Business, Izmir...
  16. Dolphin

    European Parliament questions

    Merged thread FWIW Spanish 23 diciembre 2022 Sensibilidad química múltiple y encefalomielitis miálgica en el Parlamento Europeo: resultado agridulce de una iniciativa de 2022 Artículo original: https://www.sensibilidadquimicamultiple.org/2022/12/iniciativa-ue-2022-para-sqm-y-em-sfc.html...
  17. Dolphin

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    Yes, here's a screenshot from one of their old magazines
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