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Nice to see this. Small quibble: I'm sceptical about the idea that the PACE Trial investigators are not to blame for using the Oxford criteria, that they used it because of advice they got? I know, for example, that Peter White is very much his own man and would consider himself very...

Looks like someone gave £10,000, meaning they only need £3000, now.

https://www.sciencedirect.com/science/article/abs/pii/S0889159121005560 Brain, Behavior, and Immunity Available online 23 September 2021 Understanding Long Covid: Nosology, Social Attitudes and Stigma Eleanor Alexandra Byrne University of York York, York, United Kingdom Received 9 July 2021...

2 of their interviewees have/had CFS...

I personally have found sedating tricyclics (amitripytline or trimipramine) very useful. The latter has guaranteed me 8-10 hours sleep per night; when I was on the former, maybe an hour less. Compare that to around 5.5 hours a night before I started taking them (and 4 hours a night when I...

paywalled https://www.telegraph.co.uk/health-fitness/doctors-diary/became-target-militants/ How I became a target for the ME militants The current row over Nice guidelines on chronic fatigue syndrome is strikingly similar to the one I found myself caught up in 20 years ago DR MICHAEL...

Haven’t watched:

Thought I’d mention it somewhere: I’m listening to the September 25 edition of Matt and Mollie that went out on (BBC) Radio One (listening on the BBC Sounds app). Starting at around 1:10:18, a caller who is a “clinical hypnotherapist and LP coach” does a quiz on hypnosis. She never spells out...

‘My life is unrecognisable’: Long Covid patients describe struggle to get care in UK https://www.breakingnews.ie/world/my-life-is-unrecognisable-long-covid-patients-describe-struggle-to-get-care-1187573.html

I make basic images like that with Paint which I believe came free with my PC.

An issue is if an unflattering image of someone else is used alongside an article where someone is interviewed, the interviewee may not be happy with that representation being associated with them. Even a wheelchair may not be something the patient is happy to be associated with. Now if the...

I think if a normal/nice photo of an interviewee is used, it isn’t necessarily a problem as it can show that looks can be deceiving as the text will show the person’s problems. Of course, if someone is willing to submit a photo when they are not so well or maybe even two photos (when they look...

I don't understand your logic: are you saying the journalist/media outlet decided not to use a supplied photo by a patient because they looked well? That is not my experience.

I have organised lots of media interviews over the years. One reason stock photos were sometimes used by a media outlet was because the interviewee wouldn’t agree to be photographed and/or supply a photo.

I haven't been following this thread, so don't know whether the following information has already been posted or not: From: Dr. Marc-Alexander Fluks Programme: Dr Phil's Bedside Manner Station: BBC Radio 4 Date: Thursday Time: 18:30 (and 7:30, 17:30, and 22:00 BBC Radio 4 Extra)...

https://www.telegraph.co.uk/news/2021/09/16/half-britons-suffering-long-covid-might-not-actually-have/ Paywalled

I thought this Twitter thread from today was worth sharing somewhere. 2 sample tweets:

https://www.irishexaminer.com/news/arid-40698590.html

Some tweets from a long Twitter thread by a UK GP