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Yep

*facepalm*

Nor, indeed, a professional at a crappy NHS fatigue clinic saying you have CFS.

True but as said I do have a couple of concerns about the me biobank questionnaire (can't remember what exactly as I don't have a copy of it anymore)

Is this what's called a GWAS?

Potential perk of taking part is that you can ask them to give you your genetic data if you wish... I imagine that'd be more accurate than 23andme

Oh they're still recruiting... I might try again, given I have more energy to work with these days than I did when I tried before.

Re the female to male ratio in participants - could be because males may be more reluctant to admit they have depression/anxiety by taking part in a study?

Oh I nearly participated in this but then didn't because it was too much effort. Or maybe it was because I didn't meet inclusion criteria. Can't remember

This makes it sound like in traditional medicine the patient is being lazy... Because they don't have to do anything to make their medication work? Because they don't perform surgery upon themselves?? Ffs. Such lazy passive patients, huh? (Also, the person who wrote this has clearly never met a...

It's the new fashion to say that people struggling with financial hardship are just jealous of the rich. Rather than, you know, just wanting a reasonable quality of life for themselves and their family.

Will people be able to participate as healthy controls if they are the relative of a person with ME? If not, it will be more challenging to recruit healthy controls. But if yes, could it make the study biased as relatives of PWME are likely to share genes, and there would be likely to be...

If the Biobank's ME patient questionnaire is to be used for participant selection. It would be good to have a consultation about the questionnaire. When I filled it out, I had some concerns about the way that at least one of the questions was phrased. @Chris Ponting

Yeah lmao they don't record your "illness, progression and symptoms" accurately

But if it is only a small subset of ME-diagnosed people who have these abnormalities on MRI, then you'd need a rather large sample of PWME in order to be sure to catch them.

Would people not be able to feel whether or not they were experiencing traction??

I guess a trial of a surgery can never be blinded?

I wasn't even aware that there are any...

OK, here's the new plan that I'm going to try... (The numbers denote how many hours it is since I woke up) Zero: breakfast, morning supplements etc 1.5: iron supplement (because it has to be separated from one of my morning supplements by that amount of time) 7.5: levothyroxine 10.5 or later...

I'm not sure how soon you meant I should remind you...