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Is this Esther Crawley's doing?

What is MCID?

Sigh...

Scares me a little. Next thing will the DWP be putting trackers on disabled benefits claimants to monitor their activity and then saying "you walked 200m today so we're taking away your benefits as you're clearly not disabled". Or BPS fatigue clinics tracking whether patients are doing...

@RDP

I assumed it's just to do with energy being used on digestion and so less energy for other things?

I think this explanation doesn't work with him because my PEM is not something that can be proved to him, it's just what I report. Also I suspect he cares more about what the house looks like than about my quality of life, anyway.

This is a very good idea, thanks

And that is a COMPLETELY different thing. Jen Brea and Per Fink very clearly have completely different aims.

Yeah but that doesn't mean that hEDS and chronic Lyme are not in themselves valid diagnoses. Just because some people over-diagnose them.

I agree.

But that's not what typically happens here on S4ME. Typically, people with greater knowledge of the condition try to enlighten us, and then other members come along and poo-poo what they have said.

Unlikely as it's a US website and so my dad won't see it as an authority as we're British and he thinks Britain is better than America (yes, he is that sort of person, sadly).

I have severe ME. I live with my parents. My mum is my principal carer. Mum and I want to get a stairlift. But Dad refuses because (a) it would spoil his aesthetic for the house, and (b) he thinks it would discourage me to try to use the stairs myself. I've only been up and down the stairs a...

Yep.

Hmm. "School refusal, or school avoidance, is a term used to describe the signs of anxiety a school-aged child has and his or her refusal to go to school." (I got this definition from the Internet.) Surely that is different to somebody having difficulty awakening due to a sleep disorder?!

But, they talk about a "late-night lifestyle"... it's actually been found that teenagers' body clocks are naturally more suited to a later schedule. https://www.bbc.co.uk/news/science-environment-34192371

I was going to say oh dear, but then I remembered that during my A-Levels*, there were a couple of times when I missed school due to being exhausted from staying up late working on my coursework or on my university applications. I don't think that "sleep education" would have prevented that...

OK. If drugs are mostly absorbed in the small intestine then how come some drugs can work very quickly? The first time I took Zopiclone, it started to affect me within 5-10 minutes!!! (Not placebo as I wasn't expecting it to feel how it felt) And when I take potassium for muscle problems, my...

Thank you wiggle