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Okay, this is problematic. Only a "small number" of GPs still have unhelpful attitudes towards ME? Oh please. The vast majority of them promote GET/CBT. Why are the MEA encouraging us to seek management in line with the current NICE guidelines? Why are the MEA encouraging us to seek referral...

https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1YGEqHCgsBqnrlSCKiELowPvN5CTP8K34Wz0

Really? For most people it is true though? ME is just an exception.

Both are true.

Ooooh

Sorry I don't have the cognitive function to work out what you're implying. Can you spell it out to me please?

Oh clearly she wasn't saying that. Presumably she didn't have the energy or time to write a sentence about each of those.

And 46%, does that mean that 46% of the preventable harm was due to these diagnostic errors? Or that 46% of people were misdiagnosed?

I can't really see this happening. Once the CCG people read the book and find that it is against CBT/GET/etc (it is, right? Please tell me it is??), they will surely change their minds. They're not gonna go giving GP's a book that disagrees with the official NHS line.

What does that mean? Errors of diagnosing physical disease as psychological? Or errors of (supposedly) diagnosing psychological disease as physical?

Plus the fact that undergraduates need to do their research study in order to progress in their chosen field! It's rarely gonna be a groundbreaking study, but helping an undergraduate by participating in their research is a way to help people to achieve their potential. And to reduce the stress...

Can you sign it if you live in a country which has just left the EU?

I hope I have misunderstood you here. It sounds like you are saying that you told NICE that PWME need a more persuasive version of CBT?!

If you want to be an ally to PWME, please don't go round saying that ME can respond long-term to placebo. That is exactly the sort of thing that the psych brigade will lap up. Ooh look it's all in their heads, they just need to believe that they're receiving a treatment that works!

I see your points here.

And frankly, if it was easy to produce improvements in functional capacity with placebo in this illness, then ME wouldn't be such a serious, life-ruining illness. (Since it is the impact upon functional capacity which makes this illness life-ruining.)

In a PWME, a placebo is not going to produce a persistent improvement in step count. Unless the PWME was currently doing less exercise than they actually could. Which is unusual - most of us are doing the max thay we can without making ourselves more ill. If someone increased their activity...

Tweet updates from Bhupesh Prusty: https://s4me.info/threads/tweets-from-bhupesh-prusty.13416/

(On a side note, I am wondering how you take a biopsy from a human brain?! Does the person have to be dead?)