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I wonder if the RCN are aware that the NHS websites have not been properly updated since the new ME/CFS guidelines? (and that there is a continuing effort to suppress the contents)...

job ad Research Fellow - Biostatistician (0.4FTE) London School of Hygiene & Tropical Medicine - Department of Clinical Research https://www.jobs.ac.uk/job/CMD016/research-fellow-biostatistician-04fte

haha, no. just an ordinary bus,. people squeezed past to get to the middle/back of the bus. But there was no cheese and wine.

Had my booster today (pfizer). A friend emailed me to say they were doing walk in booster jabs in a morrisons carpark a short drive away and offered to take me. It was a 'mobile unit'; in other words, they had hired an ordinary bus and stuck an nhs banner on the side. Very shambolic; lots of...

The challenges and opportunities associated with phage therapy 7th January 2022 ?? https://www.healtheuropa.eu/the-challenges-and-opportunities-associated-with-phage-therapy/112612/

Abstract Background Patients with functional neurological disorders (FND) often present with multiple motor, sensory, psychological and cognitive symptoms. In order to explore the relationship between these common symptoms, we performed a detailed clinical assessment of motor, non-motor...

Study has been approved by the South African Health Authority for individuals with documented COVID-19 infections who develop debilitating physical and neuropsychiatric symptoms that persist for more than 12 weeks after the viral infection has passed - Enrollment is expected to commence in Q1...

20 December 2021 E-005634/2021 Question for written answer E-005634/2021 to the Commission Rule 138 Günther Sidl (S&D) Subject: Chronic fatigue syndrome (CFS/ME) An estimated 2 million people suffer from chronic fatigue syndrome (CFS/ME) in the European Union. Exceptionally rapid physical...

@Valerie Eliot Smith might have some useful info (suggest you contact via pm).

not aware of PubPeer before; PACE trial is up there https://pubpeer.com/publications/B746FEC462E026347C5D46BB6A7644 eta: doesn't seem that difficult to add a comment. might be partly because (if the PACE trial entry is anything to go by, they don't have all the authors email addresses (this is...

Cochrane training manual: Chapter 5: Collecting data https://training.cochrane.org/handbook/current/chapter-05#_Ref515528070 (many issues raised do not appear to have been adhered to in previous reviews).

Nelson T, Zhang LX, Guo H, Nacul L, Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multisystem medical condition with heterogeneous symptom expression. Currently, there is no effective cure or treatment for the standard care of patients. A variety of ME/CFS...

Covid Science: Virus leaves antibodies that may attack healthy tissues By Nancy Lapid 4 minute read https://www.reuters.com/business/healthcare-pharmaceuticals/virus-leaves-antibodies-that-may-attack-healthy-tissues-b-cell-antibodies-2022-01-03/

not a very good article in the FT,; no mention of ME, and it says "Women, people with obesity, and those who were on invasive mechanical ventilation are all more likely to develop long Covid.". Long Covid: why do some people have symptoms months after infection...

see full thread

Very PACE trial based information. eg" Adverse effects Surveys by patient groups of their members have suggested that GET may be harmful to some people with CFS. However, this finding is believed to be due to inappropriately planned or progressed exercise programs, possibly undertaken...

Job ad NHS Sheffield posting this here rather than on the ME/CFS services because it looks like they are now increasingly integrating the two services; this seems to be the way things are going (see the government report on the IAPT...

The Health and Social Care Committee’s Expert Panel: Evaluation of the Government’s progress against its policy commitments in the area of mental health services in England This is a House of Commons Committee Expert Panel report, evaluating Government commitments in the area of mental health...

Charities and the Freedom of Information Act Date posted: 06/02/2020 https://www.russell-cooke.co.uk/insight/briefings/2020/charities-and-the-freedom-of-information-act/ It would appear that if they (Cochrane) now have a formal agreement with NICE then they no longer will be able to use...

that's odd the link doesn't work anymore. oh well here's the google scholar one https://scholar.google.co.uk/citations?user=6rmDrdUAAAAJ&hl=en