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  1. Sly Saint

    BBC Article: Long Covid: 'I have to choose between walking and talking'

    Merged thread https://www.bbc.co.uk/news/uk-england-beds-bucks-herts-59584146
  2. Sly Saint

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    ah see, if that were being done in the UK they'd have called it MABEL. (micro activity breaks in everyday life?) 'sorry cant do that right now I'm taking/doing a mabel'.
  3. Sly Saint

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Background and Objectives: Symptoms and hemodynamic findings during orthostatic stress have been reported in both long-haul...
  4. Sly Saint

    Blog Psychology today: Differentiating Fibromyalgia, Depression, and CFS

    https://www.psychologytoday.com/gb/blog/happiness-is-state-mind/202112/differentiating-fibromyalgia-depression-and-cfs I didn't read any further because if they still haven't got to grips with the diagnostic criteria.......
  5. Sly Saint

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    Not yet recruiting Sarah Schiebler, University of Zurich Estimated Study Start Date : January 2022 Brief Summary: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a distinct disease entity with an estimated prevalence of 0.3-0.7% and more common in women (3:1 ratio). It can be...
  6. Sly Saint

    UK govt: Open consultation: Women's Health Strategy: Call for Evidence

    Results of the ‘Women’s Health – Let’s talk about it’ survey Updated 23 December 2021 https://www.gov.uk/government/consultations/womens-health-strategy-call-for-evidence/outcome/results-of-the-womens-health-lets-talk-about-it-survey
  7. Sly Saint

    Patients with (ME/CFS) Greatly Improved Fatigue Symptoms When Treated with Oxygen-Ozone Autohemotherapy 2021, Tirelli et al

    Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Greatly Improved Fatigue Symptoms When Treated with Oxygen-Ozone Autohemotherapy Abstract (1) Background: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic syndrome characterized by fatigue as its...
  8. Sly Saint

    United Kingdom: Action for ME (AfME) news

    "A collaboration of M.E. charities, led by Action for M.E., has been granted funding from the Scottish Government to support M.E. education for doctors in Scotland. .... we are now working in partnership with M.E. Association, #MEAction Scotland, The 25% M.E. Group, Dr Nina Muirhead and the UK...
  9. Sly Saint

    News from Australia

    James Cook University This is a survey about the time to reaching diagnosis and re-diagnosis of women with chronic conditions in Australia. Contact us: lea.merone@my.jcu.edu.au, lea@doctors.org.uk Project timeline: January-June 2022 https://jcu.syd1.qualtrics.com/jfe/form/SV_9v2dfyqUg3IuuWy
  10. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Munira Wilson Liberal Democrat Spokesperson (Health and Social Care) To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) increase awareness of postural tachycardia syndrome and (b) ensure that the condition is not (i) damagingly missed or (ii)...
  11. Sly Saint

    Prevalence of chronic pain in LTCs and multimorbidity: A cross-sectional study using UK Biobank, 2021, Nicholl et al

    Abstract Objectives: Chronic pain is often experienced alongside other long-term conditions (LTCs), yet our understanding of this, particularly in relation to multimorbidity (≥2 LTCs) is poor. We aimed to examine associations between the presence/extent of chronic pain with type/number of LTCs...
  12. Sly Saint

    ME/CFS services in the United Kingdom

    job ad NHS Royal Cornwall Hospitals Clinical/Counselling Psychologist/Psychotherapist - Chronic Fatigue Syndrome/ME Service...
  13. Sly Saint

    Oxford Scholarship online textbook: Tutorial Topics in Infection for the Combined Infection Training Programme - needs updating

    https://oxford.universitypressscholarship.com/view/10.1093/oso/9780198801740.001.0001/isbn-9780198801740 contains this Post-Infection Syndrome Sherine Thomas DOI:10.1093/oso/9780198801740.003.0051...
  14. Sly Saint

    CBT for IBS induces bidirectional alterations in the brain-gut-microbiome axis associated with gastrointestinal symptom improvement, 2021,Jacobs et al

    I am curious to know what exactly the CBT consisted of as I seem to remember in another trial (different research group, I think it was the moss-morris lot) they gave the recipients advice on diet.
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