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yes, I get that. My point was that some activities (anything involving over-exertion) limit what I can do on the same day. If I attempt to do more it will affect me even more the next day, and limit what I can do still further. I can only dream of doing either of these (certainly the first is a...

Abstract Treatment for individuals with fibromyalgia syndrome (FMS) is complex and is not always accessible to those who could benefit. The aim of this study was to conduct a preliminary evaluation of a mobile-app-delivered, cognitive behavioral treatment (CBT)-based intervention in helping...

this is just from memory, but the problem i found was that you could only select one answer and there was a choice of something like, 'I am more ill the next day' clearly aimed at PEM, but there was also, something about 'it limits what other activities I can do' which is what I tended to pick...

Long COVID symptoms in exposed and infected children, adolescents and their parents one year after SARS-CoV-2 infection: A prospective observational cohort study Summary Background Long COVID in children and adolescents remains poorly understood due to a lack of well-controlled studies with...

Now published in the European Journal of Neuroscience. Has link to Peer-review history. https://onlinelibrary.wiley.com/doi/abs/10.1111/ejn.15828

https://www.s4me.info/threads/using-communities-of-practice-theory-to-understand-the-crisis-of-identity-in-chronic-fatigue-syndrome-myalgic-encephalomyelitis-cfs-me-2021-murray.23724/...

£6m needed to tackle ME crisis as patients demand action over long covid fears features @Emsho and her mum https://www.dailyrecord.co.uk/news/scottish-news/6m-needed-tackle-crisis-patients-28069473

"Finally! New @WHO guideline specifies: NO EXERCISE THERAPY for #PostCovid patients if they suffer from POST-EXERTIONAL SYMPTOM EXACERBATION." it's only taken 'the ME community' 30 years of grief to begin to get this acknowledgement and the fight still continues. :sick:

article about the paper An Ongoing Tragedy: Women with ME/CFS, Their Infertility, Miscarriages & Babies Born with Learning Disabilities (substack.com)

Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men, it tends to develop between mid-20s and mid-40s, including the main childbearing age (15–45 years). There are currently no systematic reviews...

The highs and lows of a PhD in ME research - Quadram Institute

Clinical Psychology in Europe. the Official Academic Journal of the European Association of Clinical Psychology and Psychological Treatment TC is on the editorial board https://cpe.psychopen.eu/index.php/cpe/editorial-board

RGA (Reinsurance Group of America, Incorporated (NYSE: RGA) is one of the largest global life and health reinsurance companies. With headquarters in St. Louis, Missouri, RGA supports clients and partners around the world through innovative approaches and customized solutions.) article...

MEA Work underway to support the development of a Delivery Plan on ME/CFS https://meassociation.org.uk/2022/09/work-underway-to-support-the-development-of-a-delivery-plan-on-me-cfs/

article on the paper Fatigue May Artificially Increase Disease Activity Scores in Lupus https://www.rheumatologynetwork.com/view/fatigue-may-artificially-increase-disease-activity-scores-in-lupus

Fatigue is independently associated with disease activity assessed using the Physician Global Assessment but not the SLEDAI in patients with systemic lupus erythematosus Abstract Objectives To analyse whether reported fatigue, one of the most challenging manifestations of systemic lupus...

Special Issue "Bias in Health Care Service Experienced by People with Long COVID or Chronic Illness: Lessons for the Public Health and Medical Community" https://www.mdpi.com/journal/ijerph/special_issues/EH45SDFABN

eta: alternative link https://www.sci-hub.ee/10.1016/0005-7967(94)00077-w

full pdf Paediatric chronic fatigue syndrome: 25 year perspective