Search results

is it me or has there been a flurry of papers this week?

When the patient and family blaming begins

Thanks

Ok I got the wrong impression there so they think the increase in myelin elsewhere in the brain indicates it’s possible there’s reduced myelin in the brain stem.

https://www.s4me.info/threads/hyperintense-sensorimotor-t1-spin-echo-mri-is-associated-with-brainstem-abnormality-in-cfs-2018-barnden-et-al.5032/#post-97306 More on this please

Yep totally agree cheap CBT will continue to be used because they will find ways to cut the staff involvement with clients to make it cheaper and cheaper. and NHS will sign up to these contracts and unless the contracts are well constructed they will be locked in for x years. It will take a lot...

@Hutan shows how good their grasp on stats is if they can get several out of 6........... she'll be saying they all recovered when she meant improved next o_O

this really is fake news

guess your prognosis - who does she think they are, Mystic Meg (we need a crystal ball emoji)

does any low carb diet really suggest replacing all the carbs with meat?? I eat more eggs and probably a fair bit more meat and dairy (goat/sheep not cow) than last year and my cholesterol and triglycerides have both reduced more than 15%. going low carb has increased my veg intake carbs I...

I had IAPT CBT which wasnt supportive Ive mentioned before it was like a sausage machine lowest common denominator. The youngish woman was pleasant enough but had to stick to the framework which made her come across as an automaton, unengaged. In fact one of those chat things you get online...

omg I was googling to see if I could find this adverse events checklist mentioned in the paper and see what it involves maybe why couldnt the patients fill it in rather than therapists and I found this 2008 editorial from Nutt and Sharpe Uncritical positive regard? Issues in the efficacy and...

leaving work due to ill health shouldnt be such a lottery @It's M.E. Linda Im sorry about that. I hadnt started engaging with benefits when I put in my ill health retirement claim but I know exactly what you mean about dealing with one process being enough to cope with. I didnt claim ESA until...

what is generally missing in discussion of reasonable adjustments is that there shouldnt be a presumption that reasonable adjustments can solve the issues for everyone and continuing to work is the universal aim. I had a really flexible manager and was well supported but in reality once I...

ok so would it be correct to say in really really basic terms this is the opposite of what happens in MS because MS folks lose myelin whereas we appear to have too much??

maybe your case presents issues they are struggling to find a way of not investigating?

is this telling us anything new?

as someone who has gradual onset ME borderline of mild/moderate and had it for possibly 10 or more years undiagnosed it is impossible for me to pin down when ME actually started It took so long to get diagnosis because of the difficulty of identifying that the impact of exertion had gone beyond...

I see @Graham has added a comment on there about ME & CBT:thumbup:

if they want to talk about maladaptive beliefs and behaviours this is what they should focus on - patients are having to either A consciously bend the truth to their medical professionals (as usually not doctors involved) just saying what they want to hear to get out of the system with least...